Questions about ASO test

[pandakid11]

Hi

Back in November, my son got very ill with throwing up, fever etc...this migrated to uncontrollable movements, shaking etc...scared us to death. We went to his PCP and emergency room. It never got better, so we admitted him to hospital, who ran MRIs, EEGs etc...after all this, they said it was conversion disorder. We brought him home

and it never improved. They tried tenex, but this made it worse and through him into a stupor. After tracking down a doctor that deals with unusual cases, we have found he has severely high ASO test, thus diagnostic for Rheumatic Fever.

He has had shakes (uncontrollable movements), fevers, feels awful, severe pain (especially in joints), fatigue and looks like he has the worst flu. Also, he is very emotional, either crying or has periodic anger. He has already been on multiple antibiotics so we are plugging along praying for a miracle.

My questions are this:

1) How did hospital miss this? I realize it was never in his throat, but still, the symptoms!!!

2) How do you get over Rheumatic Fever? If Prednisone does nothing, does this rule out PANDAS? He is on day 5, the final day, and so far, not better.

 

Thanks for your help. 2 Wiped out parents.