Update!

[sdrew99]

Just wanted to update - especially since it is good news (so far...crossing fingers!) My daughter was on Omnicef for 10 days, and by the time she was done with the course of abx...SHE WAS HER OLD SELF! We are amazed. AMAZED.

 

When Sydney was diagnosed with strep 3 weeks ago, and I brought up PANDAS to her ped, she thought it was definitely possible and had us make an appt. with a pediatric neurologist. Our appt. was for May 9th, BUT we got in this past Monday on the cancellation list! The neuro is a PANDAS believer, and definitely thinks this is what we could be dealing with. She ordered all the blood work - titers, thyroid, vitamins, iron, etc. and we will be doing an MRI on her brain next Saturday. We'll get the blood work back hopefully sometime next week.

 

But it is truly amazing how much of a change has been made since the abx. I am floored. She's happy, playing outside again, does things when asked, is nice to her brother. Sure, she gets frustrated sometimes, but she handles it like a normal kid - not with rage, throwing, hitting, screaming. I'm actually kind of scared to type this out, because I'm afraid this will all go away.

 

A special thanks to all of you who helped me figure this out and helped me find a great doctor!

[JAG10]

I'm sorry I don't know your dd's story. How did you know she had strep? Did she have regular "sore throat/fever" symptoms?

 

Wonderful news!!!!

[sdrew99]

Sorry! Should have linked to my original post a few weeks ago: http://www.latitudes.org/forums/index.php?showtopic=16680&st=0&p=133831entry133831

 

After reading about PANDAS, her little brother was dx'd with strep that Friday. On Monday (on the suggestion of some members here) I had my daughter swabbed (ZERO symptoms, except for the rage, anxiety, etc.) and she was positive for strep. She started Omnicef for 10 days and she's been doing great for the last week or so.

Edited March 29, 2012 by sdrew99

[EAMom]

Just wanted to update - especially since it is good news (so far...crossing fingers!) My daughter was on Omnicef for 10 days, and by the time she was done with the course of abx...SHE WAS HER OLD SELF! We are amazed. AMAZED.

 

When Sydney was diagnosed with strep 3 weeks ago, and I brought up PANDAS to her ped, she thought it was definitely possible and had us make an appt. with a pediatric neurologist. Our appt. was for May 9th, BUT we got in this past Monday on the cancellation list! The neuro is a PANDAS believer, and definitely thinks this is what we could be dealing with. She ordered all the blood work - titers, thyroid, vitamins, iron, etc. and we will be doing an MRI on her brain next Saturday. We'll get the blood work back hopefully sometime next week.

 

But it is truly amazing how much of a change has been made since the abx. I am floored. She's happy, playing outside again, does things when asked, is nice to her brother. Sure, she gets frustrated sometimes, but she handles it like a normal kid - not with rage, throwing, hitting, screaming. I'm actually kind of scared to type this out, because I'm afraid this will all go away.

 

A special thanks to all of you who helped me figure this out and helped me find a great doctor!

 

Yay! I'm glad she's doing better.

 

PS If she relapses off the antibiotics, you might consider contacting NIMH to see if she qualifies for the IVIG study. http://clinicaltrials.gov/ct2/show/NCT01281969

[JAG10]

1333060841[/url]' post='136016']

Sorry! Should have linked to my original post a few weeks ago: http://www.latitudes...31

 

After reading about PANDAS, her little brother was dx'd with strep that Friday. On Monday (on the suggestion of some members here) I had my daughter swabbed (ZERO symptoms, except for the rage, anxiety, etc.) and she was positive for strep. She started Omnicef for 10 days and she's been doing great for the last week or so.

 

Ok, so she has been symptomatic of strep in the past, but this most recent episode, she has little brother to thank for pointing you in the right direction. I have two girls, one 12 and one 8, both pandas/pans reacting behaviorally to strep and myco-p. When you have a child who doesn't get "regular sick" it can be so tricky to know what is going on. You state your dd is never sick to which I say ditto, but it's really not true. It's just that you will have to train yourself to look for behavioral changes rather than coughs and fevers. Now everybody can have a bad day, but after a couple, you will need to be suspicious and play detective. You are in the wonderful position to know what is going on early and gratefully she is responding to abx in a perfect way. I hope it stays that way!

Kudos to you for being so on the ball. It took me YEARS to figure this out with asymptomatic girls.

[sdrew99]

1333060841[/url]' post='136016']

Sorry! Should have linked to my original post a few weeks ago: http://www.latitudes...31

 

After reading about PANDAS, her little brother was dx'd with strep that Friday. On Monday (on the suggestion of some members here) I had my daughter swabbed (ZERO symptoms, except for the rage, anxiety, etc.) and she was positive for strep. She started Omnicef for 10 days and she's been doing great for the last week or so.

 

Ok, so she has been symptomatic of strep in the past, but this most recent episode, she has little brother to thank for pointing you in the right direction. I have two girls, one 12 and one 8, both pandas/pans reacting behaviorally to strep and myco-p. When you have a child who doesn't get "regular sick" it can be so tricky to know what is going on. You state your dd is never sick to which I say ditto, but it's really not true. It's just that you will have to train yourself to look for behavioral changes rather than coughs and fevers. Now everybody can have a bad day, but after a couple, you will need to be suspicious and play detective. You are in the wonderful position to know what is going on early and gratefully she is responding to abx in a perfect way. I hope it stays that way!

Kudos to you for being so on the ball. It took me YEARS to figure this out with asymptomatic girls.

 

Thanks. It's funny...her brother has always been the "sick" one with all of his issues. And we would always talk about how HEALTHY Sydney was, because she never missed a day of school, never "caught" what the rest of us had and thought she had an iron-clad immune system. LOL! Crazy to me know that I think back on all of it. I am so relieved that we are on the right track with this thing.