cdnmom Posted March 29, 2012 Report Posted March 29, 2012 I am trying to find a doctor in Ontario, Canada who will test/treat for Pandas and keep reaching dead ends. Does anyone know a doctor in Ontario Canada. Thanks, Diane
momcap Posted March 29, 2012 Report Posted March 29, 2012 Sorry, I never found anyone. The closest I got was Dr. D (head of immunology and rheumatology) at Macmaster Children's. He was interested in PANDAS and willing to prescribe prophylactic antibiotics. But he wasn't willing to do anything further and told us to contact Dr. Swedo in the U.S. We had already consulted Dr. T in New Jersey, so we never got in contact with Swedo. I know of a few Canadian families dealing with PANDAS, and everyone I know is using U.S. doctors. Someone just posted a Canadian Facebook page for PANDAS this week. You could join the group and ask for a referral. Maybe they know of someone? I'll try to link it here. Not sure if this will work: http://www.facebook.com/#!/groups/237713506303753/
cdnmom Posted March 29, 2012 Author Report Posted March 29, 2012 Where in the U.S. is doctor Swedo? I could travel to Buffalo if there is someone out there who diagnoses and treats Pandas.
momcap Posted March 30, 2012 Report Posted March 30, 2012 I think she's in Bethesda, MD. She works with the NIMH. They are currently recruiting for a PANDAS study on IVIG. I think they pay travel expenses and everything if your child qualifies. http://intramural.nimh.nih.gov/research/pi/pi_swedo_s.html http://clinicaltrials.gov/ct2/show/NCT01281969
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