PANDAS Rages---Help!

[tpotter]

PM'd you. BTW, both my ds's have also had the "rages" (that was my DS16's first symptom. Horrible, horrible, horrible. Walls have been broken, furniture thrown, and even my arm was broken one time. No, they don't know how to stop it, and it happens instantly. It's caused by inflammation in the basal ganglia (encephalopathy and/or encephalitis.)

 

As mentioned before, try using ibuprofin (it decreases inflammation, and crosses the blood brain barrier. Also, I would use a word of caution with benedryl. My DS19 used to have opposite reactions to benedryl and some medications...it would make him very hyper (that's not the case anymore, since treating with IVIG.)

 

But, again, I would also suggest you get hold of the NIH on Monday first thing in the morning. Apparently the process is very rapid, and that would take a great deal of stress off your whole family.

 

Good luck

[NancyD]

Sadly, this is true of so many doctors. Traditional medicine has let so many of us down the wrong path. Or they dropped us altogether because our kids are much too complex. That is why many on this forum (including myself) have chosen to go with an integrative doctor. They look at the whole picture (and body). And they try to treat the underlying causes.

 

My most frustrating thing with all this is the doctors do not look at the whole picture.