rowingmom Posted March 23, 2012 Report Posted March 23, 2012 Unfortunatey I have been around the block with lyme Sorry, but what do you mean by this. You found treatment did not help PANDAS symptoms?
bulldog24 Posted March 23, 2012 Author Report Posted March 23, 2012 Oh sorry... no I have chronic lyme 5 years now and co founded a lyme support group. Unrelated to any pandas
socalmom Posted March 23, 2012 Report Posted March 23, 2012 If you go to lymenet.org or maybe the lyme page here, lyme support groups are listed by state. The LDA mightvalso have a list, but the support group I co founded prob wouldnt be on the lda site. Also every state has a lyme yahoo group. They are pretty helpful. Let me know if you need help finding a group. Unfortunatey I have been around the block with lyme Thanks. I have Neuro issues as I was misdiagnosed for over 10 yrs. I signed up to a yahoo group but it meets so far from me. (i am in Southern CA) I'll PM for name of your group.
nicklemama Posted March 23, 2012 Report Posted March 23, 2012 I'm sorry things are bumpy right now. I've been there. I remember before my DS was diagnosed and while he was raging at us, wanting to just get in the car and drive away and never come back. It was only a thought but I thought about it more than once.
cobbiemommy Posted March 23, 2012 Report Posted March 23, 2012 Sign me up for running away! Some days I just want to run and hide, but that is not going to happen. I swear when this is over, and I know it will be, if there is any money left, the Cobbs are taking a vacation! Our whole family has earned it!
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now