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Posted

Today at our IVIG #5 with Dr B. He went over labs for our ds12. He is currently on augmentin XR 2000 x2 (4000 a day) along with minocyclin for myco. He has been on zithro., biixon, & minocycline to treat the myco-P. His numbers have not gone down, so Dr. B thinks this is why the IVIG's are not really showing improvement like the first few did. Can myco be that much of a " bugger" to cause that big of issues? Dr. B changed ds from minocycline to Cipro. Who has experience with this one and did it help with your childs myco-p or OCD?

 

Thanks for your help,

Linda

Posted

My limited understanding is that yes, myco can be very hard to beat. Here's an article by "the" myco guy - Garth Nicholson

http://www.morgellons-uk.net/?p=467

 

But if a chronic infection is the reason for stalled progress, and continued IVIGs have not aided in recovery, can you help me understand the reasoning behind continued IVIGs? I know some with lyme are also following this protocol and one explanation I heard was that it strengthens the overall immune system, but that doesn't seem to be what you're experiencing in your labs. I mean no disrespect. I'm just confused.

Posted

Linda,

 

I don't have any advice for your specific question, but I did want to mention that there are warnings regarding the use of Cipro and tendonitis and tendon rupture. Maybe you are already aware of that but if there are any adverse reactions or pain, please be aware that this drug carries a black box warning for this problem.

 

http://www.webmd.com/osteoarthritis/news/20080708/fda-warning-cipro-may-rupture-tendons

 

excerpt...underlining mine

 

Officials also say they are adding new warnings cautioning that patients over 60, those taking corticosteroids, and those who've undergone heart, lung, or kidney transplants are also at increased risk of tendon rupture or tendinitis if they take fluoroquinolones.

 

Researchers don't know exactly what fluoroquinolones do that promotes tendon rupturing. Theories suggest the drug may impede collagen formation or interrupt blood supply in joints, Albrecht says.

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