cdklyn Posted March 9, 2012 Report Share Posted March 9, 2012 Just curious about other experiences here. My daughter's journey began back in September of 2011. We took her to the ER because all of her joints were swelling, painful, had fever, etc. Had a positive strep test and elevated blood count indicating infection. Ran test for Rheum Fever, all came back negative. Has since had a cardio consult and all looks good with her heart. At that time they diagnosed it as Reactive Arthritis related to strep infection. Lab results at that time indicated a negative ASO test meaning her ASO level were normal. Has anyone else had this experience where the strep test was positive, but ASO negative? They're running more test next week to see where she's at now. Had tonsils out 3 weeks ago and no strep infection since then. Anyone have similar experience? Link to comment Share on other sites More sharing options...
peglem Posted March 9, 2012 Report Share Posted March 9, 2012 Just curious about other experiences here. My daughter's journey began back in September of 2011. We took her to the ER because all of her joints were swelling, painful, had fever, etc. Had a positive strep test and elevated blood count indicating infection. Ran test for Rheum Fever, all came back negative. Has since had a cardio consult and all looks good with her heart. At that time they diagnosed it as Reactive Arthritis related to strep infection. Lab results at that time indicated a negative ASO test meaning her ASO level were normal. Has anyone else had this experience where the strep test was positive, but ASO negative? They're running more test next week to see where she's at now. Had tonsils out 3 weeks ago and no strep infection since then. Anyone have similar experience? We have had countless +strep tests over the years-really too many to even make a close guess- but we have only once had a mildly elevated ASO. I know that this is very common. You can find info on it in the Helpful Threads for PANDAS thread at the top of the forum main page (above the ad). This is a very common experience and more common in girls than boys. Link to comment Share on other sites More sharing options...
EAMom Posted March 9, 2012 Report Share Posted March 9, 2012 (edited) Just curious about other experiences here. My daughter's journey began back in September of 2011. We took her to the ER because all of her joints were swelling, painful, had fever, etc. Had a positive strep test and elevated blood count indicating infection. Ran test for Rheum Fever, all came back negative. Has since had a cardio consult and all looks good with her heart. At that time they diagnosed it as Reactive Arthritis related to strep infection. Lab results at that time indicated a negative ASO test meaning her ASO level were normal. Has anyone else had this experience where the strep test was positive, but ASO negative? They're running more test next week to see where she's at now. Had tonsils out 3 weeks ago and no strep infection since then. Anyone have similar experience? This is very common (in both PANDAS and non-PANDAS kids), cultureable strep without a rise in titers...or sometimes titers rise but not enough to go above the "normal range". My dd had positive cultures and PANDAS severe enough to require hospitalization, yet her titers (both ASO and anti-dnase b ) were "normal". When we checked them 1 mo. later, they had dropped even lower. Here is a recent thread on the subject of low strep titers despite positive cultures. http://www.latitudes.org/forums/index.php?showtopic=16476&st=0&p=132365&fromsearch=1entry132365 Edited March 9, 2012 by EAMom Link to comment Share on other sites More sharing options...
bulldog24 Posted March 9, 2012 Report Share Posted March 9, 2012 My sons blood work is always normal. But ded has pandas and strep Link to comment Share on other sites More sharing options...
Mayzoo Posted March 10, 2012 Report Share Posted March 10, 2012 (edited) Kiddo had 4 positive strep tests over a two month period, and her ASO was very low at 6 (under 150 is normal I believe). We just got a negative strep test on the 29th confirmed by culture. Edited March 10, 2012 by Mayzoo Link to comment Share on other sites More sharing options...
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