tiffany_v Posted March 5, 2012 Report Posted March 5, 2012 I'd love some of your insight!! My 6 yo PANDAS son is on 100mg of Azithromycin daily for prophylaxis. He is about 6 weeks in. He has been doing very well up until about a week ago. A lot of his symptoms have returned. I'm not sure if it is normal for them to have ups and downs while on antibiotics or if I need to push getting his dosage upped? He's also been complaining of his legs being tired a lot, and last night I noticed quite a few bruises on his legs. I just spoke to his dr and he is ordering another ASO, cbc, sed rate and possibly some other tests. The dr is not wanting to up his dose at this time. I just want to make sure I'm not missing anything. I also am interested in possibly starting some natural path options; vitamins, diet changes, ect. Any thoughts would be greatly appreciated! Thank you Tiffany
tpotter Posted March 5, 2012 Report Posted March 5, 2012 I'd love some of your insight!! My 6 yo PANDAS son is on 100mg of Azithromycin daily for prophylaxis. He is about 6 weeks in. He has been doing very well up until about a week ago. A lot of his symptoms have returned. I'm not sure if it is normal for them to have ups and downs while on antibiotics or if I need to push getting his dosage upped? He's also been complaining of his legs being tired a lot, and last night I noticed quite a few bruises on his legs. I just spoke to his dr and he is ordering another ASO, cbc, sed rate and possibly some other tests. The dr is not wanting to up his dose at this time. I just want to make sure I'm not missing anything. I also am interested in possibly starting some natural path options; vitamins, diet changes, ect. Any thoughts would be greatly appreciated! Thank you Tiffany I like the fact that your dr is checking. Sounds like he may have "caught" something, and/or there could be a vitamin deficiency, or something else (especially when you consider the bruises and the fatigue. Natural path is good....expensive....but good. We have been doing that for about 1 year now, and although it's not the complete piece of the puzzle I had wishful thoughts over, I do believe it is helping.
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