missionmom Posted March 4, 2012 Report Share Posted March 4, 2012 I have 2 questions for those on this forum: 1 -Were your children on a lot of abx early in life (pre-PANDAS presentation)? 2 - Has anyone used IV glutathione, or any form of glutathione for that matter, in treatment? Link to comment Share on other sites More sharing options...
nicklemama Posted March 4, 2012 Report Share Posted March 4, 2012 My DS was rarely on abx early in life. Maybe 3-4 times before PANDAS at 5.5yo. He was rarely sick. Have not tried IV glutathione or any other form, at this time. Link to comment Share on other sites More sharing options...
MomtoJake Posted March 4, 2012 Report Share Posted March 4, 2012 I have 2 questions for those on this forum: 1 -Were your children on a lot of abx early in life (pre-PANDAS presentation)? 2 - Has anyone used IV glutathione, or any form of glutathione for that matter, in treatment? Sent you a PM! Link to comment Share on other sites More sharing options...
BoyIowa Posted March 4, 2012 Report Share Posted March 4, 2012 Ds had several rounds of abx from about 9 months to 2 years from many eye and sinus infections. Then nothing until strep at 4 and nothing again until strep and PANDAS/Lyme at 6 1/2. No glutathione. Link to comment Share on other sites More sharing options...
BoyIowa Posted March 4, 2012 Report Share Posted March 4, 2012 (edited) . Edited March 4, 2012 by BoyIowa Link to comment Share on other sites More sharing options...
LNN Posted March 4, 2012 Report Share Posted March 4, 2012 We've used oral glutathione. DS felt it helped some, but it was pricey and I could only find research that said it was poorly absorbed. So as we added supplements and the monthly budget grew larger, we stopped. Some over on the lyme forum have used IV glutathione and some have experience with a glutathione cream. Link to comment Share on other sites More sharing options...
NancyD Posted March 4, 2012 Report Share Posted March 4, 2012 We started using IV glutathione long before my DD (now 16) was diagnosed with PANDAS (age 7) and Lyme/Bartonella/MycoP (age 15). She had severe colitis as a very young child and was allergic to almost every type of food. The IV glutathione, which DD did monthly for 2 years, cleaned up her gut completely and with the exception of dyes and additives she can now eat anything. It really helped her immune system! Because her MD is 4 hours away we no longer travel there monthly as we used to. Now, most consults are done on the phone. But when we do go there we make certain to do IV glutathione. Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted March 4, 2012 Report Share Posted March 4, 2012 My DS was on abx frequently from about 18 months until 3 years for recurrent ear infections. Usually amoxicillin. We've never tried gluthione. Link to comment Share on other sites More sharing options...
bulldog24 Posted March 5, 2012 Report Share Posted March 5, 2012 1. My son had rarely been on abx except strep. 2. Not tried glut for pandas but i tried it personally and found it helpful for lyme Link to comment Share on other sites More sharing options...
mkur Posted March 5, 2012 Report Share Posted March 5, 2012 I have 2 questions for those on this forum: 1 -Were your children on a lot of abx early in life (pre-PANDAS presentation)? 2 - Has anyone used IV glutathione, or any form of glutathione for that matter, in treatment? Lots of abx - ear infections - uri - stomach flu - scarlet fever(approx 4 yrs old) Sickly - would not be here without abx. Have not done glutathione treatment - never offered. Link to comment Share on other sites More sharing options...
Mayzoo Posted March 5, 2012 Report Share Posted March 5, 2012 (edited) DD was on maybe six courses of abx in her 10 years prior to dx. Never tried the glutathione treatment. Edited March 5, 2012 by Mayzoo Link to comment Share on other sites More sharing options...
browneyesmom Posted March 6, 2012 Report Share Posted March 6, 2012 1) Yes, she had constant ear infections & ruptures, starting at 6 mos post-RSV infection (mild). First set of tubes at 10 mos & second set at almost 5 yrs. After that, went straight into constant strep throat infections. Dr. L suspects it's been strep her whole life. 2) No... we're looking into some other things currently, though. Link to comment Share on other sites More sharing options...
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