1 year post # 2 IVIG

[Tracie]

Hello everyone,

Well this time last year we with Dr K for my DD IVIG #2

and I am happy to say what a year..

she is doing great,I hate to say it out loud

but I am we are on daily zith and now we are going to go down

to everyother day through the winter,and then a little less in the Summer

If I dont homeschool her next year.. well that will be our

true test for sure..

We are going to put her into some sports in the Spring and Summer and see how she does

So for now we have it under control..

 

Tracie

[HT's Mom]

Tracie,

What has the year been like? Has she progressively gotten better, or has she been well since #2? I ask because we did IVIG #2 in November and DS is not as well as we would have hoped. Dr. K says wait to see, but it is hard.

[BoyIowa]

I am so happy or you, that's great news! I pray that we are all there some day.

[Tracie]

Tracie,

What has the year been like? Has she progressively gotten better, or has she been well since #2? I ask because we did IVIG #2 in November and DS is not as well as we would have hoped. Dr. K says wait to see, but it is hard.

Ya it took a little time to get her back to 100%

but not sure how long it took, she had a couple of relaps for sure with her teeth falling out

and a cold but nothing that a up in abx's didn't take care of..

I am sorry that he is not getting better yet..

keep your chin up and keep talking with Dr.K

how old is he? my DD is 7 and she woke up with this at

the age of 4 she had so many ear infections that we lost count

and that is what did it..

she had been sick all the time from the age of 6 months

[eljomom]

Tracie---may I ask what her symptoms were? Did antibiotics help prior to IVIG?

[Tracie]

Tracie---may I ask what her symptoms were? Did antibiotics help prior to IVIG?

Hello..

Well her first symptoms were she was just afraid of everything

and being away from me

huge seperation anx..

and she would shake her hand

we got on abx's and they did help but we did ivig and it went away

for about 9 months

She got sick again and it all started again

so we went back for ivig again and we have been good for a year with abx's

so we just hold our breath everyday

[Mary M]

Tracie,

 

What wonderful news. We are getting close to the one year mark for IVIg #2 and I, too, am afraid to say anything for fear that it will just come crashing back...but the improvements have been slow and steady, they have continued day by day over the past year.

Mary

from Michigan