I would like to offer moral support as he tackles this mystery illness

[Not_the_Same]

After reading many of the articles, if not all, and watching the various news clips and programs, found by links provided by most of you all.

I have painted a picture in my mind.

We had very little information when we first heard of this Mystery illness in Leroy.

"Tourette like symptoms"These were the google keywords that brought me to ACN 2 years ago.

It sparked emotion in many of us, because it was remarkably familiar to us.

This Mystery illness appeared to be shrouded by secret closed door meetings amongst the New York department of health, and there minions.

They sited HIPPA as they gave little or no answers.Did HIPPA even apply here?

Each day, I have checked this site to find another piece of information.

Ahh to see conversion disorder,I thought oh these poor girls, what kind of treatment will they receive?

They said the equivalent to "it is all in there head".

With the original diagnosis,I think they dismissed infections, along with various other things.

It was not until Dr T appeared , did i hear of attention given to the infections. Dr T found infections or indicators of past infections, that could trigger these symptoms, and he plans to treat them.

If the original Dr.s saw these infections, did they attempting to treat them or did they dismiss them?

After reading the article in EAMom's linkAnd some from the other night,I started to realize that it is very possible Dr T. has his hands full , not only with diagnosing and treating the afflicted,but he has to be careful of those who have Egos that need mending.

The conversion disorders diagnosis, is not convincing to me against the fact that 6 of the 8 had elevated ASO titers.

Shouldn't these elevated titers provide a red flag of some sort?

This simply means to me - Where there is smoke there is fire.

 

I wanted to mention Dr T said "pandas like illness" i don't think he said a definitive Pandas or pans.

I took this as meaning an infection... be it strep. mycoplasma or some other infectious agent triggering the auto immune response of tics.

I am confident Dr T. will treat the patients with the correct dosage of Abx for the correct duration of time to clear the infections.

This cure will have nothing to do with the placebo effect.

I have noticed that it is not only the infectious microbes under the microscope at this time, but possibly Dr T also.

I look forward to reading about the dramatic improvements with all of misdiagnosed.

-

[EAMom]

Yeah, I really like that Dr. T. said "PANDAS-like". That was a good way of getting around NIMH's stringent criteria (which we find is changed anyway, now Swedo is saying onset doesn't HAVE to be b-4 puberty)

 

Hmmm, and isn't SC "PANDAS-like"? and PANDAS is "SC-like"? things are getting blurry...