nicklemama Posted February 9, 2012 Report Posted February 9, 2012 You live near three well known PANDAS specialists. I'd get an appointment today. Dr Bouboulis is in CT. Dr Trifiletti is in NJ. Dr Latimer is in MD.
EAMom Posted February 9, 2012 Report Posted February 9, 2012 Rochester, NY Yikes! Stay away from the Univ. of Rochester, that's for sure! The Rochester area is PANDAS-naysayer Central!
FrogPrince Posted February 9, 2012 Author Report Posted February 9, 2012 Rochester, NY Yikes! Stay away from the Univ. of Rochester, that's for sure! The Rochester area is PANDAS-naysayer Central! Funny you say that... It's been brushed off every time we have brought it up for 3 years. We have spent too much time and money on 'professionals' that try to figure him out by throwing new medications at him every couple of months. This is stealing his childhood and I need to get it back for him.
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