Kiera Posted February 5, 2012 Report Posted February 5, 2012 Hi all, We just had the 1st AZ Pandas support group meeting yesterday with 11 families represented and e-mails for 6 others unable to attend! We will only grow from here! I'm truly feeling the power of parents pushing this into the spotlight, is the way to go, to help support the few Drs out there willing to treat. We have a media contact and will hopefully do a spot at an oppertune time (possibly post LaRoy outcome, although that seems to be getting more complicated every day!). Every parent who hears a TV spot on Pandas/Pans will hopefully lock away that info in the back of their mind and for the unfortunate few who's kids develop it, hopefully will be saved years of misdiagnosis and get fast tracked back to health! Power to the people, get networking folks! Contact kateazpandas@gmail.com for az info.
hugs2day Posted February 5, 2012 Report Posted February 5, 2012 Great job Keira! The fact that so many families showed proves this is not a rare disease and is more common than the media represents. It will take all of us advocating for our kids to change the image of this horrible disorder.
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