Coprolalia (verbal onslaught)

[SSS]

This is our largest issue with dd6.

The OCD has gotten much, much better,

but this coprolalia (uncontrollable 'swearing' bad words)

is very present.

In a 6 year old it sounds like this:

'You're an idiot! Okay you nitwit! Shut your mouth or I'll shut it for you! Stupid! Shut it! (etc.)

Maybe it reads funny, but it is not. It is said repeatedly, and with some force behind it. Yelling at times with it.

Thank God she never does it in school- but saves it all for home. Of course, this is not how we speak in our home.

At school she is able to control herself.

Not at home- impulsive at home.

 

I can't see any traditional therapy helping this.

 

Any thoughts or experience with this?

 

Thanks.

[PowPow]

NO ideas on treating, only commiseration.

 

My daughter does this extensively-- same wording as yours

I really believe they cannot control this. It has gotten better- after pex and IVIG and lots of medicines, but it is still there.

It is almost a reflex- she is spoken to and she responds with "shut up! go away!I hate you!"

I hope someone has some ideas!

[SSS]

NO ideas on treating, only commiseration.

 

My daughter does this extensively-- same wording as yours

I really believe they cannot control this. It has gotten better- after pex and IVIG and lots of medicines, but it is still there.

It is almost a reflex- she is spoken to and she responds with "shut up! go away!I hate you!"

I hope someone has some ideas!

 

That is exactly it.

I am sending off a neurotransmitter test (urine) tomorrow- if anything comes of it, information and supps that help,

I will respond back and share.

It also makes me think it is inflammation driven?

 

*sigh* It's a hard one. Feels like verbal abuse.

[tpotter]

NO ideas on treating, only commiseration.

 

My daughter does this extensively-- same wording as yours

I really believe they cannot control this. It has gotten better- after pex and IVIG and lots of medicines, but it is still there.

It is almost a reflex- she is spoken to and she responds with "shut up! go away!I hate you!"

I hope someone has some ideas!

 

That is exactly it.

I am sending off a neurotransmitter test (urine) tomorrow- if anything comes of it, information and supps that help,

I will respond back and share.

It also makes me think it is inflammation driven?

 

*sigh* It's a hard one. Feels like verbal abuse.

 

 

I just read this to my 19 yo, because it's exactly what he has been doing for the past 4years! He definitely gets worse when sick, and better when not sick, and also got better after IVIG and PEX. When it gets really horrendous, he says: "I don't know why I'm doing it, can't help it." But, other times, I really question whether or not it is just verbal abuse.

[PowPow]

Thanks for letting me know I am not alone. I am really tired of it and it is HORRIBLE, HORRIBLE, HORRIBLE for the other kids. She has younger siblings to hear her speak (yell) at us and them sometimes this way is very destructive to everyone. Actually, this is one of the symptoms that is starting to put me over edge. YIKES.

Let me know about the urine test, S&S.

[momcap]

DS8 has this too. I never thought of it as coprolalia though. We took him off antibiotics on Wednesday (4 weeks off for the new borellia blood culture). On Thursday morning I poked my head in his room to say "Good morning!". The reply was "Shut Up!". So, 24 hours off antibiotics and this symptom is front and centre again. It's really tough! I don't think I have any advice at all. Just sympathizing. PowPow - I worry about my younger kids too. It's bad enough by itself, but when they have to listen to it I wonder how it affects their development.