any dr.'s in arizona that treat PANDAS

[julie_2girls]

My daughter was diagnosed with dysautonomia last October. We have our second visit with autonomic specialist next month traveling from AZ to VA. Well it is becoming more apparent that we are also dealing with PANDAS. I am considering a phone consult with Dr. K. I wonder if there is anyone in AZ that treats PANDAS with antibiotics, IVIG?

 

Considering asking for a steroid burst to see if ocd may be autoimmune (PANDAS). also going back on antibiotics I hope too. We see our dr tomorrow.

 

Daughter's biggest clue she is feeling horrible is large, large pupils. This is also common in dysautonomia from adrenaline surges. I was surprised to read recently common in PANDAS as well. I guess nervous system affected in both. There is some overlap with anxiety, brain fog, dilated pupils...

 

Thanks! i am going broke traveling. Now I am thinking she has 2 major issues, not including her already dx'd hashimotos and psoriasis. She is 15 y/o.

[Kiera]

Yes, there are 5 in AZ. New AZ support group to hold 1st meeting Feb 4th in Phoenix! I'll PM you, look in top right cornor of screan beside your name for message.

[julie_2girls]

Thanks I pm'd and emailed you back:)