Mayzoo Posted January 17, 2012 Report Share Posted January 17, 2012 Here are the other two threads I started about kiddo for history: First thread: My link Update: My link Her rapid strep test was positive on the first pedi visit (I was a bit surprised by this). We had some small gains on days 4-5 of the amoxicillin, but then lost them all on days 6-7. When I tried to get the doc to change the antibiotic over the phone, they wanted her to finish the ten days and then if she had symptoms to see her again. She never had symptoms to start with, so I went ahead and made the appt for the 11th day. On the 11th day, she was still positive for strep. They wrote her for 10 days of high dose Augmentin ES 600. The NPC (nurse practitioner) was initially very reluctant to go with an extended therapy of antibiotics for PANDAS (mainly because she felt it may have been out of her authority). I talked to her for a decent amount of time, and she agreed to talk to the doc in charge of the practice. With the information I gave her, she talked to the doc in charge and the two of them agreed to do a 3-4 week test on high does antibiotics, and they also wanted her to start an SSRI for the anxiety. We just started the augmentin this morning, so I have no information on progress yet. I will update as I can. I am beside myself with excitement for the possibilities . At least now I can confirm or rule out this avenue for my sweetie. Link to comment Share on other sites More sharing options...
trggirl Posted January 18, 2012 Report Share Posted January 18, 2012 Hi Mayzoo, it's so great to hear that the doctors are working with you to figure out what is going on. I do want to mention that sometimes SSRI's can activate PANDAS children. You did not post that you started it yet so I thought I would mention it. Please keep us updated. Link to comment Share on other sites More sharing options...
kimballot Posted January 18, 2012 Report Share Posted January 18, 2012 Sounds like you were very prepared and proactive. Nice job! I hope all goes well for you and your family! Link to comment Share on other sites More sharing options...
tpotter Posted January 18, 2012 Report Share Posted January 18, 2012 That's wonderful that you were able to convince the docs. I do agree with Trg grl, though, as Dr. Murphy's article shows that SSRI's can make PANDAS kids worse. Also, if you start on the SSRI's while she is taking the HD abx, you won't know what is causing what (whether she gets better or worse, you won't know whether it's the abx or the SSRI.) Link to comment Share on other sites More sharing options...
AmySLP Posted January 19, 2012 Report Share Posted January 19, 2012 After months of a difficult to eradicate strep infection, the only abx that worked to clear that infection was clindamycin. Just something t o know about in case the augmenting does not clear it Link to comment Share on other sites More sharing options...
AmySLP Posted January 19, 2012 Report Share Posted January 19, 2012 After months of a difficult to eradicate strep infection, the only abx that worked to clear that infection was clindamycin. Just something t o know about in case the augmenting does not clear it Link to comment Share on other sites More sharing options...
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