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Posted

We saw Dr. L. recently, and she was looking over my DS's labwork. She said we have to stop IVIG for a longer period of time (which isn't a problem anyway, because insurance is now denying it,) because the proteins were really elevated. I said that it was because he had just had IVIG, and her response was that proteins need to be checked before each IVIG, because it can cause strokes. This isn't to scare people off from getting IVIG, it's just something to keep in mind.

Posted

What is the lab measure for protein she is evaluating?

 

 

On the CBC, there were proteins measured. I don't know specifically which ones they are...maybe others who have actually gotten IVIG from Dr. L. can tell you. Also, I'll see if I can figure it out from his labs. But, she said she always checks to make sure the proteins are not elevated, and my DS's were quite elevated.

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