Irena

[Sydsmom]

Kim,

 

That's some good stuff. Thanks so much for your time in posting all this great info. It is appreciated by myself and I'm sure many others!!

 

Lisa

[Irena]

Sydsmom is right. You are great, Kim, in finding all this interesting (although so overwhelming at times) stuff.

 

Staś is at the moment at our neighbours' with his brother and his dad. There is the Soccer World Cup final on TV and we don't have one (gave our old one to our parents and did not buy an LCD one, yet - I'm not in a hurry ). The neighbours have a really big CRT TV. I was reluctant to let him go but my husband just looked at me and said "This is the final!" This is this fine line Kim was talking about. I couldn't tell him not to go although I don't like him sitting in front of this big telly. But keeping him at home would certainly put a lot of stresss on him.

 

Irena

[kim]

Irena & Lisa,

 

Your welcome and I'm not great (thanks Irena), just a Mom who is determined to help my son's and anyone else that might benefit from something I'm learning, if at all possible. Then, as Andy has pointed out a few times, there are some Dr.s that kind of dabble in this, but aren't really that experienced. If we end up needing anything more extensive than what we're doing now, I want to know what is going into my kids, and why.

 

Irena, after you mentioned Stans rashes, I started looking at Psoriasis last night. I have a patch of this under one elbow and a little on the back of my head. Looks like another hyper immune response, which I had heard before, but never paid that much attention to (takes on a new meaning now). What I had NEVER heard before, was that there is a form of this that is brought on by a strep infection. It doesn't appear to be the form I have, but I did find this interesting.

 

Had to tell you too Irena, I understand your concern and the conflict btwn views with your husband. My husband is really supportive and tolerant with the time I spend on the computer, but he will bring my youngest son home a doughnut and chocolate milk some weekend mornings. I have told him, it's easy when you're not the one dealing with the majority of this. Luckily, it seems a lot is behind us, for the most part, but it is NOT forgotten. Probably by the time I'm able to relax about all of this, it will be time for Grandchildren Can you just about imagine me for a mother-in-law? I'll be trying to get a peak in every girls mouth, that they might date, to make sure they don't have any fillings. I'll insist she nurses, never bottle feeds. There will be a check list of pesticide exposure and I will want to know the family history of ANY auto immune disfunction. Only natural birth will be tolerated. Immunizations, well I won't even go there. I'll have to approve of any and all. She will have to sign something swearing to never have a flouride treatment for the child. If I see anything that could possibly be painted with lead, it will promptly need to be sealed in plastic and removed. Organic baby food. Pass a written and oral exam on excitotoxins, and if the infant is male, joint custody with Grandmama.

 

I think I better leave the country.

 

Kim

[Irena]

Hi, Kim!

 

You really made me laugh when I was reading what your future daughters-in-law will have to go through. Let's hope there will be more understanding among doctors about all those issues you have mentioned.

 

By the way, shouldn't you be asleep at the time you wrote your last post? When in the morning I look what's new on the board there is usually no-one here as it is blissful night at the other side of the Atlantic.

 

Please, tell me more (or deliver some links) about fluoride treatment. My sons used to have their teeth fluorided every six months up till about a year ago (not to mention those amalgamat fillings that were suppose to "work better with kids" ). When just before Easter he had the fillings replaced my friend, the dentist suggested that Staś may have too much fluoride. He's got some tiny white spots on his permanent upper front teeth. I thought it was due to Calcium defficiency as he tested so in hair test. But she said it is rather too much fluoride. Please, share with me whatever you know about it! I always thought if we talk about heavy metal poisoning it is usually mercury or lead (can we call fluoride heavy metal? I suppose not, but I have no idea what it looks like in pure form). Does a regular chelation get rid of it?

 

Irena

[Irena]

I just wanted to add that just five minute reading of Polish web sites about fluorosis was enough to scare me! I've also read that there has been a real battle in your country about fluoride added to drinking water.

 

Yes, from what I read Staś has it although they say that tooth discolouring is a mild form of fluorosis. But they also say that too much fluoride affects nervous system, too.

 

I'm so angry! You want the best for your kids, you listen to doctors and trust them, treat them like gods who know everything best and you end up giving the ones you love additional immunization and fluoride treatment and you pay for it because money doesn't matter if it's for your child's good!

[kim]

Yes Irena I should be asleep!

 

http://www.mercola.com/2005/jun/28/fluoride_bones.htm

 

I have a particular interest in this too. I will tell you about it when I have a little more time.

 

It has many links to studies, etc.

 

Kim

[Irena]

Scary!!!

 

Any links on how fluoride affects nervous system? Is it included in regular tests for heavy metal poisoning? Is there a way of getting rid of it from the system?

[kim]

Irena,

 

Sorry it took so long to respond. I've been putting my computer time into researching my youngest son's diet issues. This is an article that has been really interesting. You may want to read it too. I'm not sure how current this is, I suspect it's older, but has some really good stuff anyway. I'm just getting to the part that I'm super interested in.

 

http://www.geocities.com/aaa_list/infus.htm

 

I don't know much about flouride except it stores in the bones. I believe it's a bi product of aluminum, and I feel like there's plenty of reason to avoid it, especially in the case of people who may have an inability to detox as well as some others. I was UPSET when I read some of the of things that you were reading about too. I thank the Lord I found out some of this stuff before someone developed a cavity. One area we have been lucky in, is that neither of the boys have any amalgam fillings. Neither has ever had a cavity. I have one, and that's all I've ever had in a permanent tooth. Hopefully, I passed SOMETHING good on to them!

 

If you've come up with additional info. on flouide, I'd love to hear it.

 

Hope Stas is doing well!

 

Kim

[Irena]

Thank you, Kim!

 

What an article!!! It seems to cover all the issues of body chemistry. I went through it very quickly just to see what it is about and I can see that I have to reserve a lot of time to read it carefully. I will also certainly take it with me when we go to a DAN doctor. I only have to avoid temptation to add another supplements to the present list when I read about something that is claimed to be great (we haven't tried L-glutamine, enzymes, GABA, etc.) but I will live it to the doctor (we haven't seen her, yet, because I'm still waiting for some lab test results.

 

But the more I read the more I can see how great is NOW Special Two. It has so much in it: all kinds of antioxidants, vits, minerals, enzymes and aminoacids. But there is also possibility that it may have too much of something.

 

I'm really confused with chelation issue. I spent a lot of time reading Andy Cutler's posts. His method seems to be safe and easy (as for mercury he uses either ALA only, which he belives is the best chealting agent, or combined with DPMA or DPMS for enchancing the chelating process and decrease side effects). From what I very briefly read in the article you posted it does not seem that safe and easy. The author mentions dr Klinghard which Andy Cutler is opposed to

 

Staś is doing great! And that is the most important thing! For the time being I'm not going to worry about the coming school trip. They will be staying in a place run by the Church so I hope the food will be simple and healthy

 

Irena

[Irena]

Hi,

 

I just wanted to add that I am translating a book by an American author. It is kind of business fiction. Funny, but one of the two main characters has Tourette's. The sad thing is that it is defined as a psychological disorder and the only symptom this guy has is rude comments in stressful or boring situations (I would say half of the population may suffer from this ) He's been doing fine on drugs for many years but "like so many people who rely on medication for mental health, Will decided it was time to take on his disorder by himself".

 

I'm going to add a short comment in a foot-note about what TS really is (shall I mention mercury poisonning in immunization, environmental allergies, diet issues, candida and so on - just joking

 

But this shows how little the understanding of the problem is and that when people see someone ticcing their first thought is "he's got to have some psychological problems (toxic parents, stressful school environment, etc.). Yesterday I talked to a mother (I mentioned her in the7roses' thread) whose son for more than two years was treated by a psychiatrist and she lived with guilt that she and her husband were not good enough parents to secure stable and peacefull family life for their kids (they moved two times and the father worked far from home during week-days)

 

Irena

[kim]

Irena,

 

How ironic about the book. I really do wish that you could sneak your own chapter in there!

 

I got looking at the darn meningitis vax. again, and here I am, NO sleep.

 

Glad to hear that Stas is doing well. I try to gather bits and pieces about chelation too, but the boys are just doing too well, to give it too much consideration. As I've said before, you don't forget where you could be at any time though. I'm so thankful for the Dr.s that have dared to challenge the standard treatments, and look for ways to heal, instead of medicate. As time goes on, I'm sure there is going to be a lot more help for these conditions.

 

I'm going to post the new info. on the vaccine, and TRY to get to sleep.

 

Have a good day!

 

Kim

 

BTW, I'm still trying to finish that other Bio article too.

[kim]

Irena & All,

 

When I read that you may be removing milk from Stas diet again Irena, I thought about this article. It has been one of the reasons that I chose to use digestive enzymes, instead of eliminating dairy. My son doesn't get a rash from it though. I have read the pros and cons of eliminating. Again, it's probably going to depend on what is going on with the child as a whole, what decision you make in this area.

 

 

http://www.enzymestuff.com/serotonin.htm

 

kim

[Irena]

Thank you, Kim!

 

I've been thinking about enzymes but as we are going to see the DAN doctor I will leave it up to her.

Yesterday I again carefully read the ALCAT test results and the first sentence says that if nonreactive foods were eaten regularly before the test there is more than 90% probablility that they are safe. We hadn't had milk and wheat for over two months before the test!

 

As for wheat, I understand that if someone is sensitive to it, he/she is in fact sensitive to gluten, right? because he regularly had gluten before the test (in rye and oat) I can assume the test results for wheat, rye and other grains (negative) are reliable. I can't say this about milk.

 

The good thing is that it took over two weeks after we had introduced diary back for symptoms to appear (skin rashes under his elbow and itching). That could mean that if we clear the system from diary products (yesterday I read it takes from 60 to 90 days) we can introduce it back using rotation, e.g. having diary every 4-5 days or once a week. What do you think?

 

Yesterday Staś was very upset when I suggested withdrawing diary. I tried to think it over in bed and got up with a decision that I cannot be so strict about this blood type diet. So today he had a graham roll for breakfast and agreed that we can try a few days without diary. Because of the blood type diet we withdrew many foods that he had before and tested negative (i.e. he's not allergic to them).

 

He again tested negative for giardia lamblia and candida in those more sensitive stool tests our allergy doctor ordered. it is a good news as for lamblia. As for candida, I know the test is not reliable because it does not indicate whether candida is in the body. I suppose all the steps we have undertaken more than five months ago (anti-candida diet, probiotics, garlic, flaxsed oil capsules, aloes (no good for B type ) must have helped to balance the level of candida in the gut. The question is what is the situation in the body. Do you think I can introduce yeast, say, once every two weeeks? I read that during the DAN conference held in Warsaw last fall (very small one - still there is only one DAN doctor in Poland) one of the speakers was instructing parents that if you freeze bread made with yeast and use straight after taking it from the freezer (tosting a slice of bread) you thus deacvtivate yeast and it is safe. Do you know anything about it?

 

The good news is that Staś' tics are minimal, practically unnoticeable!

[Irena]

Not true anymore! His tics got visibly worse. I suppose it's his body reaction to food he is sensitive to(probably milk, as I said).

[kim]

Irena,

 

Yes, it appears that once you stay away from an IgG reactive food, you can sometimes reintroduce, if removing offending foods allows the intestinal permeability to reduce (heal). From doing a quick search, it appears the jury is out on oats. Some articles say people with gluten sensitivity can handle oats. I have also read where observation can be as reliable as test results. I found it helpful as a guide (didn't have great confidence in the accuracy of the test we had as it was not ELISA or SAGE..and these are the ones I have read several times are best) but my youngest son eats so few foods anyway, gluten and caisen were the ones I was most interested in. He showed caisen sensitivity but not gluten. However, when he eats pretzels in abundance he gets ticcy. Can't help what the test showed, I'm almost positive there is something irritating with the pretzels.

 

With all the reading I do Irena, I do not see anyone discussing foods containing yeast as being important in yeast control. Limiting carbs, fruits, sugar of course, yeast killers, probiotics, no fenol (digestive enzyme) but not yeast in foods. Doesn't mean there is nothing to it, but I don't know anything about it. I will keep an eye out for anyone discussing it though.

 

Oats link

 

http://www.csaceliacs.org/library/useofoats.php

 

kim