Update on the T&A Progress

[airial95]

We're now almost 2 weeks post T&A, and still pretty impressed with the results. We had about 7 100% symptom free days! (Something we haven't had since this journey started for us) It was amazing. About a week post op, we noticed doing this neck craning/shoulder shrugging type movement. He initally told us it was because his neck was itchy (and sure enough, we looked, and there was a mosquito bite there!) However, the bites are all gone, and the movement continues - has actually gotten worse. It was very prevelant all day yesterday, so we have to conclude that this is a new tic. It's a little disheartening, because this is his most noticeable tic so far - all of his others have been facial grimaces of some sort...which could go unnoticed if you weren't paying attention. This is pretty noticeable.

 

But - We're still seeing little to no food OCD - which is AMAZING for us, and his appetite has gone through the roof. It's like he hasn't eaten enough in 2 years because of the OCD so now he has to catch up!!

 

We've seen a bit of an uptick in the hyperactivity too the last couple of days. But all still very manageable - and probably not much more than you'd see from a normal 4 year old who has had to keep "resting" from surgery!

 

Our pediatrician did extend the Augmentin, but it's a slightly lower dose, so I emailed him this morning to see if that was intentional or if he wanted him to stay on the same dose that the ENT had him on. This may be the reason for our backslide, and we see Dr. Murphy next week...

 

So far we're still THRILLED that we did the procedure, are happy with the results, and based on our much more mild PANDAS daughter having 4 positive cultures this year, our pediatrician's advice and our son's progress, she'll be in the ENT on Wednesday to see if we can get hers out before the year's end!

[kimballot]

LIKE

[MomtoJake]

That is great news! I am very happy for all of you.

[ajcire]

Did the night terrors stop?

[airial95]

Yep - the night terrors stopped late last week. But for about 2 days after that, he was still waking up a lot through the night, but was happy - wanted to play, a snack, something to drink...etc. Regardless of how often he was up at night, he was still bright eyed and bushy tailed at 6 AM!!! He started sleeping again through the night this weekend, and of course, cause he went back to school yesterday, he couldn't be bothered to wake up on time and we had to drag him out of bed at 6:30! Why is it that they won't sleep past 6 AM on the weekends when everyone can sleep in, but on school days, they'd sleep til noon if you let them??