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Posted

Kim, I haven't tried those but our doctor just suggested a zinc lotion because Syd is taking a zinc supp and still testing low in zinc. We are going to try the lotion.

Posted

Lisa,

 

Don't know if you were following the Mag. sulfate cream info. I shared with Giselle, but the same question was asked regarding Kirkman's zinc sulfate cream. Larry from Kirkman's said about half of the zinc from their cream was thought to be absorbed "according to the literature," unlike the amount of mag. provided by the magnesium sulfate (very minimal.) Don't know if this applies to the product that you're going to use, but thought it was worth mentioning. If you have any question regarding how much is actually absorbed with a lotion, I would call the lab, or at least run it by your Dr.

 

Kim

 

Shared from a parent on the autism/enzyme bd. sorry no link provided. Lots of talk about tics and PANDAS btwn asd solutions and aut/enzymes. Way too much for me to find coincidental, hence my interest in vaccines and all progress made on the autism/ASD front. PDD=Pervasive Developmental Delays. Kim

 

PANDAS

Research that may bear fruit for people with PDDs is now occurring

on a number of fronts. The first breakthrough was the Pediatric

Autoimmune Neuropsychiatric Disorder Associated with Streptococcus

(PANDAS) project, steered by the National Institute of Mental

Health's Dr. Susan Swedo. Dr. Swedo's group has identified a

bacteria-triggered auto-immune response as the trigger in some cases

of childhood neuropsychiatric illness.1 One of the researchers' most

interesting findings was that there is a blood marker, B lymphocyte

antigen D8/17, associated with PANDAS. This could permit the

development of a diagnostic blood test.

According to the PANDAS hypothesis, when some children are exposed

to the common group A beta-hemolytic streptococcus bacteria, the

same bacteria that causes "strep throat," they develop antibodies

that mistakenly attack the basal ganglia in the brain as well as the

strep bacteria. These patients present with symptoms consistent with

Obsessive-Compulsive Disorder (OCD) and/or Tourette's Syndrome (TS).

PANDAS researchers have also found that some children already

diagnosed with OCD or TS have symptom flare-ups when they contract

strep infections, although this may occur with other illnesses as

well.

 

Although the initial NIH study targeted OCD and TS only, it raised

interesting possibilities for the diagnosis and treatment of PDDs.

First, both OCD and TS appear to have a genetic or medical link with

PDDs, appearing fairly often in the same families. Second, both

conditions are frequently secondary diagnoses in people who have a

primary diagnosis of autism or another PDD. Finally, researchers

note that subtle social deficits, sensory integration problems, and

other symptoms that might otherwise be attributed to PDDs also occur

in some children with TS and OCD.

 

So it came as no surprise to some observers when a research team at

the Seaver Autism Research Center announced in early 1999 that the B

lymphocyte antigen D8/17 marker was also found in 78 percent of the

autistic children studied, and that its presence correlated strongly

with severity of compulsive behaviors.

 

Many parents interviewed reported that their children with PDD-NOS

or Atypical PDD have had chronic, recurring strep throat and/or

strep-related ear infections. Some have reported obvious increases

in stereotypic movements or tics, obsessive-compulsive behavior,

aggression, withdrawal, and other "autistic-like" symptoms during

these infections.

***************************

Notice these statements

 

One of the researchers' most

interesting findings was that there is a blood marker, B lymphocyte antigen D8/17, associated with PANDAS and......

So it came as no surprise to some observers when a research team at

the Seaver Autism Research Center announced in early 1999 that the B

lymphocyte antigen D8/17 marker was also found in 78 percent of the

autistic children studied, and that its presence correlated strongly

with severity of compulsive behaviors.

 

This may be one of those "stupid questions," but is there anything on a titer test referring to this marker? Why aren't our kids being tested for this? Discovered in 1999? Might we want to take a copy of this to our Peds? Does anyone have time to search for this study?

Posted

This is from the book Feast Without Yeast (I believe)

 

 

Pg. 13: "After some investigation, I found out that barley malt is a

raw material used in making beer. The barley is allowed to sprout under

controlled condition. After a certain period of time, the sprouted

barley is heated. The resulting substance is called malt and is the raw

material for making beer. The malt is also sweet and is sold as a sugar

substitute. In beer manufacturing, yeast is mixed with the malt and

chemically alters the malt to form alcohols and many other chemicals.

This process is called fermentation. Why is malt such a problem? I

perused my investigation over the years and was able to obtain from a

beer manufacturer a list of chemicals found in barley malt. Many of

these chemicals are toxic and affect the nervous system. Many slow the

brain down, which are part of the reason these chemicals and malt are so

bad for children with developmental and behavior problems. This

information made sense. I had observed clinically that the behavior of

even neurologically typical children can deteriorate when they eat foods

containing malt. Our ten year old daughter, for example, becomes

typically whiney, demanding, unhappy preadolescent a few hours after she

eats any malted foods. She has become so aware of how ill she feels

when she eats malt that she reads labels before eating anything

unfamiliar. About a month after we took away malt for Avi's diet. A

baby sitter unwittingly gave him a bowl of cereal with malt. We came

home from a walk and found Avi sitting on the couch, staring into space.

He remained in that trance like state for ten days. "

 

Pg. 35 "Barley malt is a product that starts with the grain barley.

The barley is specially sprouted, then heated. This heated product

becomes the raw material for making beer. Barley malt is found in

cereals, crackers, breads, white flour, and bagels. Barley malt is the

worst offender, other types of malt, including maltodextrin (usually

malt added to corn syrup), also cause harm. When shopping read labels

carefully and avoid anything with the word "malt" in it. You will be

amazed at how many commercially prepared foods contain "malt", "barley

malt" and "maltodextrin" or "malted barley flour".

 

 

> > Pg 14...Barley malt is in nearly everything,

> > including bread, bagels,

> > breakfast cereal, and many health food snacks. It

> > is in so-called

> > natural chocolates and candies instead of sugar.

  • 3 weeks later...
  • 3 weeks later...
Posted

http://www.leadinspector.com/product/index.php

 

 

Recent talk about lead in older bath tubs, and the use of epsom salt baths in these older tubs being

problematic for exposure. Also, one parent reported that a set opf dishes purchased at Target last year, tested positive for lead.

 

Parents are saying that you can get lead testing kits at home Depot, and various hard ware stores, also at link posted here.

 

********************************************

 

 

In a message dated 18/04/2006 02:01:56 GMT Daylight Time, info@houstonni.com

writes:

 

 

Dr. Houston Inteview on Autism One Radio April 19

Listen on your computer!

Dr. Devin Houston, Ph.D. enzyme biochemist and CEO of Houston

Nutraceuticals, will be interviewed by Dr. Larry Kaplan on _Autism One Radio_ () . The

interview will debut on April 19, 9:30 p.m.-10:00 p.m. Eastern Time.

Miss the interview? It will be available in the Autism One _archives_

(http://rs6.net/tn.jsp?t=89oosubab.0.jehcvubab.ixtevyn6.2596&p=http://autismone.org/ra

dio/default.cfm?radio=viewAllArchive) .

Topic: The Role of Digestive Enzymes for Autism

Date: Wednesday, April 19, 2006

Time: 9:30 p.m.-10:00 p.m. Eastern Time

Listen Online: Autism One Radio _http://autismone. org/radio/_

(http://rs6.net/tn.jsp?t=89oosubab.0.nidw8tbab.ixtevyn6.2596&p=http://autismone.org/radio/)

 

Host: Larry Kaplan, Ph.D., director of _US Autism & Aspergers Association_

(http://rs6.net/tn.jsp?t=89oosubab.0.kehcvubab.ixtevyn6.2596&p=http://www.usaut

ism.org/)

Discussion will include:

* how digestion is affected by oral supplementation of enzymes

* why appropriate enzyme products may be an alternative to some

special diets

* how enzymes address digestive-related issues specific to those on

the autism spectrum

* how to identify differences between enzyme products

* signs that may determine who can benefit from enzyme use

Dr. Houston will be a speaker at the _Autism One Conference_

(http://rs6.net/tn.jsp?t=89oosubab.0.lehcvubab.ixtevyn6.2596&p=http://autismone.org/leftside.c

fm?page=11) in Chicago and _US Autism & Asperger's Association Conference_

(http://rs6.net/tn.jsp?t=89oosubab.0.qidw8tbab.ixtevyn6.2596&p=http://www.usaut

ism.org/conference_overview.htm) in Utah as well as other events listed at

_www.houstonni.com_

(http://rs6.net/tn.jsp?t=89oosubab.0.6dnmw8n6.ixtevyn6.2596&p=http://www.houstonni.com) . _Cindy Kelley_

(mailto:cindy.kelley@houstonni.com)

Events Coordinator

Houston Nutraceuticals

Posted

I have read over the years that one has to be careful with any dish made from clay. Especially from China due to the high levels of lead that is being found in the final product.

 

Now to the other extreme, crystal glassware and products often has lead in it as well

as well as processed and treated wood which can included toys that children chew.

Lets face it we live in a world that no longer regulates safety with all of the trade agreements.

Posted

Hi Andy,

 

Hope things are well with your little guy.

 

I was aware of the leaded glass and the older ceramic dishes, but glazes in the newer stuff surprised me. I think your right on with the import remark, and who knows about stuff that's made right here, if it's profitable enough. Apparently, it's still in the glaze, and if you have different colors, it may test on one color, but not the other.

 

This is part of a remark from a parents post;

 

and after doing some research found out Leaded porcelain in bathtubs was used as recently as 12 years ago.

 

It sounds like chipped or damaged, may be worse and epsom salt baths might increase uptake of lead?

 

Would love to hear an update on your son's progress when you have a minute!

 

Kim

  • 3 weeks later...
  • 1 month later...
Posted

Autism Study on Promising Supplement Approved

 

Natural Cellular Defense (NCD), a safe, natural, inert mineral

supplement has generated many encouraging reports from parents of

autistic children. NCD has attracted the interest of some of the

leading autism researchers and physicians. A randomized, double-

blind, placebo-controlled study designed to evaluate the benefits of

NCD Zeolite on Autism Spectrum Disorders was approved by BioMed IRB

on June 7, 2006.

 

San Diego, California - June 7, 2006

BioMed IRB of San Diego, California has approved a clinical trial

that seeks to evaluate the benefits of adding a patented supplement,

NCD zeolite, to the diet of children diagnosed with Autism Spectrum

Disorders. Natural Cellular Defense is purified clinoptilolite, a

type of zeolite, suspended in solution. The zeolite is purified

using a patented process and named NCD Zeolite™.

 

This form of zeolite is one of the few negatively charged minerals

in nature, and it has a microscopic honeycomb-like crystalline

structure of cavities and cages. Animal studies show that they have

the ability to attract, trap, bind and remove various heavy metals

and toxins such as mercury, lead and arsenic.

 

The study's eighty autistic children will be divided into two

groups. One group is receiving the NCD zeolite and the other the

placebo for ninety days. Both groups will be measured using a

variety of established instruments for autism diagnosis and

treatment evaluation. Further, since other animal and human studies

with zeolite have demonstrated the ability for zeolite to remove

heavy metals, a portion of the participants will receive a series of

urine excretion tests designed to detect levels of heavy metal

excretion. If previous studies in adults hold true for these

autistic children, the researchers may see excretion rates as high

as 10 times over their baseline.

 

At the end of the ninety day study period, those receiving the

placebo will then begin taking the NCD and be tracked for ninety

more days.

 

Two sites have been approved so far. In Plano, Texas, Dr. Seshagiri

Rao, a Board Certified Pediatrician is the lead investigator. The

second site, in Baton Rouge, Louisiana is lead by Dr. Stephanie

Cave. Both sites have begun recruiting for study participants.

Visit www.ZeoliteAutismStudy.com to learn how to apply.

 

Professor James Adams, PhD will conduct the study data analysis. Dr.

Adams has previously published studies on the high level of mercury

toxicity common in many autistic children. Other studies suggest a

possible link between Thirmersol concentration found in many

vaccines and the high mercury levels in autistic children.

 

Contact Forrist Lytehaause for more insights into this topic. Direct

line: (503) 699-4925 Email: Coordinator@ZeoliteAutismStudy.com.

Other helpful information regarding the study can be found at:

www.ZeoliteAutismStudy.com.

 

For More Information Contact:

Forrist Lytehaause

Coordinator@ZeoliteAutismStudy.com

www.ZeoliteAutismStudy.com

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