PowPow Posted November 19, 2011 Report Posted November 19, 2011 at least the plea in the first paragraph is! The letter was written by Dr Jenike. In case you normally trash your "junk" mail I thought I would point it out. I will say that I never trash IOCDF mail-- & if you are not a member- I would recommend you join. The support I have received from their website, the conference and the things my older children have read have been most helpful.
JAG10 Posted November 19, 2011 Report Posted November 19, 2011 Pow-Pow.....can you post a link or copy paste? Thx!
PowPow Posted November 19, 2011 Author Report Posted November 19, 2011 IOCDF link At the bottom of the IOCDF donate page -- it states how you can specify what kind of research you want to support. It lists PANS/PANDAS. The letter I am referring to came in my mailbox-- the one at the end of my driveway HE writes: "Recently, I have become more interested in the increasing evidence that infectious causes of OCD are very important, and we see young children who develop OCD suddenly after an infection (now referred to as Pediatric Acute-Onset Neuropsychiatric Syndrome or PANS). The children are routinely misdiagnosed and mistreated when correct treatment could prevent a lifetime of unnecessary suffering. Hundred of children with OCD are stuck in their illness and missing their lives despite the efforts of very dedicated parents. We need to know more about this and research is the key." AMEN TO THAT!! I am looking for my checkbook now...
Pandasmex Posted November 19, 2011 Report Posted November 19, 2011 IOCDF link At the bottom of the IOCDF donate page -- it states how you can specify what kind of research you want to support. It lists PANS/PANDAS. The letter I am referring to came in my mailbox-- the one at the end of my driveway HE writes: "Recently, I have become more interested in the increasing evidence that infectious causes of OCD are very important, and we see young children who develop OCD suddenly after an infection (now referred to as Pediatric Acute-Onset Neuropsychiatric Syndrome or PANS). The children are routinely misdiagnosed and mistreated when correct treatment could prevent a lifetime of unnecessary suffering. Hundred of children with OCD are stuck in their illness and missing their lives despite the efforts of very dedicated parents. We need to know more about this and research is the key." AMEN TO THAT!! I am looking for my checkbook now... Powpow - THANK YOU! I know Dr. Jenike and YES he is a great person.
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