How have you treated for HHV-6?

[JuliaFaith]

After ds has been on treatment for 1 year:

 

C3a/C4a are both testing normal (53/139) (Range: C3a 0-940; C4a 0-2830)

 

TGF-beta 1 is now normal 2000 (Range: 344-2382)(was 9860 during mold remediation)

 

VIP is still LOW

 

MSH - 17 (Range: 35-81) (was 11) Good to see this increasing! (maybe propolis vaporizer, getting rid of MARcons, & mold removal is helping this number??)

 

So labs are showing improvement which is great. Doing more labs for HHV-6; EBV; and CMV.

 

This HHV-6 virus, however, is not showing improvement after at least 6 months or more on Valtrex, doctor is recommending 'Valcyte.' Anyone know about this med? Insurance is wanting some pre-authorization because of the amount requested (plus, I believe it is really expensive).

 

Son seems to have a cold virus right now with a cough and it is very minimal which is amazing. A year ago if he caught a cough it was horrible and had to give him abx immediately so the PANDAS reaction was not too over the top. Even though he is not feeling well, this is good to see. Have not given him anything for this just continuing on prescribed med./herbs.

 

Any ideas on the viral end of this would be greatly appreciated.

Edited November 19, 2011 by JuliaFaith

[smartyjones]

we have used a homeopathic treatment for hhv-6. it has seemed to show good results -- although not with lab tests -- basicallly with clinical appearance of improvement.

 

i'm still very interested in the propolis air treatment you are using -- ??

[sf_mom]

We too have had good results with herbal treatments for viruses. I have heard of some going beyond Valtrex when the viruses appeared to be stubborn. However, I do not remember specifics of what was used. My friend used Valtrex in combination with herbals remedies. I just wanted to encourage you to keep hitting the virus/es with whatever you feel comfortable and that provides improvement. We've been treating viruses for 2 years now, well before we knew about Lyme. Initially we started with Sy-Immune tablets daily, then Oil of Oregeno, then Olive Leaf Extract, then finally Engystol/Viragraphis or Andrographis/IMN-V..... We had positive results for HHV6, Coxsackies 'Foot and Mouth', EBV, XMRV among family members. Older son and younger DD no longer test positive for viruses via ART and they are no longer taking anti-virals!!

 

I'll be interested to know if you give 'Valcyte' try and if you feel it helps.

 

-Wendy

[JuliaFaith]

we have used a homeopathic treatment for hhv-6. it has seemed to show good results -- although not with lab tests -- basicallly with clinical appearance of improvement.

 

i'm still very interested in the propolis air treatment you are using -- ??

Following is the company I ordered the vaporizer and the air capsules from. Just keep it going in the room my son spends his out-of-bedroom time in (have a HEPA air cleaner in his bedroom too). It has a rather pleasing scent as well.

 

Just remembered that son uses Viressence by BioPure that is probably for viruses as well. Has been taking this with other things the entire last year. Doctor just prescribed Berberis Formula by Seroyal (contains Goldenseal, Barberry & Oregon Grape). Not sure if this is more viral support?

 

 

http://www.beehealthyfarms.com

[JuliaFaith]

Thank you for the viral info. Really appreciate it!