met with a neuroligist

[colleendonny]

Hi ,

My 4 dd came down with sudden tics and off intrusive thoughts suddenly on October 19th. We met with a great neuroligist ay children's hospital in waltham MA. He thinks it may be PANS. We are doing and MRI tomorrow night and a spinal tap on Friday. Spinal tap is to check for.NMDA receptor encephalitis. I'm wondering, has anyone ever tested for Lyme co infections with spinal fluid?

[eljomom]

I don't know about the spinal tap for Lyme. I have heard of it being done, but not always being "accurate," which I think goes for any type of Lyme testing anymore.

I've never heard of doing this (spinal tap for NMDA receptors) for PANS......can you enlighten me?

[PhillyPA]

Yes, my son has been tested for Lyme via a spinal tap. He has also been tested for NMDA. I am very familiar with it.

 

It seems like you have a great neurologist in Boston. I am shocked. You can PM me if you have any questions. I have talked about NMDA at great lengths on this forum.

[colleendonny]

Eljomom- the spinal tap isn't for the PANS, basically just the NMDA encephalitis.

PhillyP I'm going to pm you.

[lmkmip67]

May I ask who you are seeing? We are in MA and thought of seeing a neurologist and a PANDAS friendly one would be great. You can PM me the name if you like. Thanks so much!

[moosiebell]

May I ask who you are seeing? We are in MA and thought of seeing a neurologist and a PANDAS friendly one would be great. You can PM me the name if you like. Thanks so much!

 

 

Can you share the neurologist's name?

 

Thanks!