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Posted

Have you had luck with any dietary changes? Dairy, Gluten etc. I have a teenager and it did take a while but each little bit made him improve. Because his immune system is in an autoimmune state his Dr told him that consuming Dairy could give him type 1 diabetes. Dairy alone gave us a big improvement and that was right after hospitalization and no meds or supplements.

 

If he will not do that I would fill the home with only organic, grass fed food. Expensive yes but not as much as having a PANDAS flare.

  • 4 weeks later...
Posted

Hi Ht's Mom and Pepper1,

 

Would be very interested in an update for your kids.

 

Was IVIG effective over time?

 

Also, intrusive thoughts have gotten worse with every exacerbation and wondering how you are dealing with this? Did IVIG help?

 

Thanks!

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