MomWithOCDSon Posted November 26, 2011 Report Posted November 26, 2011 very interesting thread -- this topic is often discussed but i wonder if we could somehow pin this. do we have somewhere here or on pandasnetwork that discusses these experiences of jag, mom, tpotter, dcmom - and others? is there any published literature on psych meds with pandas? we discovered this was pandas early on -- only due to one savvy behavioral therapist. otherwise, i think we would have definitely been lost in other diagnoses and treatments. we've had recent trouble at school and from those with no proper ability to diagnose trying to slap on labels that aren't correct just b/c they don't know and understand pandas - or actually anxiety for that matter. certainly with underlying expectations that medication is the answer. good luck with your decisions, kiera. This is the only published literature on the subject of PANDAS and SSRIs that I know of at present . . . the famous Dr. Murphy paper: PANDAS and SSRIs I think it's worth noting, also, that in a researcher's session at last year's IOCDF conference regarding OCD and comorbid disorders (TS, ADHD, ADD, ASD), the general commentary among the attendees and the panelists (including Dr. Eric Storch of USF) was that in the cases of cormorbidities, LOWER SSRI DOSES ARE MORE BENEFICIAL than are higher ones. There wasn't a single practitioner or researcher in the room who did not concur with that finding. There was only speculation as to WHY at that point in time, as well. Since PANDAS behaviors frequently involve cormorbidities, also, it seems like even the un-PANDAS-initiated psych should have a clue about this "phenomenon."
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