bws Posted October 31, 2011 Report Posted October 31, 2011 Ever since dd12 was dx I am looking (and finding) Pandas all over..... My uncle who is now in his early 50's has been a strange one all his life. We figured it was probably Aspergers. He speaks slowly, has OCD tendencies, etc etc... My father, his brother, claims that he was not like this as a young child. He recently developed a movement disorder which has been dx'd as Parkinsons. Unfortunately, he lives in Canada and with their healthcare system he is not getting real and proper treatment. Oh yeah, he was put on meds, but no one ever did an MRI or the likes. My question is: What does the "chorea" in Pandas look like? Could it mimic Parkinsons? Is it possible at all that this is and undiagnosed case of Pandas? Would any treatment help him still?
MomWithOCDSon Posted October 31, 2011 Report Posted October 31, 2011 Some of the same interventions that address some PANDAS behaviors (OCD and tics) are also being investigated for Parkinson's . . . generally, we're talking about glutamate modulation and/or neuro receptor protection. So while the genesis of Parkinson's may or may not be auto-immune, the resulting neurotransmitter impacts may be similar. I suspect my 80-something-year-old neighbor has PANS; she was "normal" and then went to the hospital one day with a bronchial infection. When she got home a week later, she'd suddenly become an intense germaphobe and developed anxiety about everything and everyone in the neighborhood. It was a 180-degree turn from who she'd been before. I told her about PANDAS and put together a thick packet with a cover letter for her to take to her doctor (who, in the meantime, had prescribed an SSRI for her). From what I can tell, the doctor ignored everything I tried to tell him; she's continued to decline and will not leave her house any more. I would think it's possible for any aged person to develop a PANS condition; perhaps it's just less likely because of the greater chronological maturation of the immune system.
Burnell Posted October 31, 2011 Report Posted October 31, 2011 Sydenham's chorea or chorea minor (historically referred to as Saint Vitus Dance ) is a disease characterized by rapid, uncoordinated jerking movements ... Not same as PANDAS with OCD and tourettes but in the same area where Strep anti-bodies are the suspect cause.
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