Stage 1 of detox is over

[Andy]

We came back from South Beach this past Tuesday and reviewed the latest toxic challenge urine test and it appears mercury is no longer detectable. According to the DAN treatments this would mean that we have taken out most if not all of the mercury that was in my sons organs and soft tissues. However, since the lead has reappeared we will delay Stage 2 of the detox by a couple of months till that is resolved again. In stage 2 ALA will be added to the DMPS/NAC/Glututhione IV to hopefully cross the blood brain barrier and pull out any mercury that may be deposited in there. We have done stage 1 detoxing for a year. Stage 2 detoxing on average from what I have read is usually much less time wise.

We have made some changes in the chelation treatments as well. We stopped the DMSA weekend treatments and are replacing it with TTFD Cream to be applied 1 to 2 times daily. The problem is the smell so on school days we most likely will only be giving 1 treatment.

I am a big fan of the chelation treatments but I must remind everyone who has read my posts or any new comer who is reading my posts that it is the second to last step in my son's treatment program.

The other steps were all based on tests as well and included

1. Supplements of vitamins, minerals and amino acids. Also included is fish oil.

2. Restricted diet due to delayed food allergies or intolerance.

3. Epsolm salt baths

4. Probiotics and now included is nystatin to kill yeast and fungus overgrowth in the gut.

5. DMPS, NAC, Gluthione IV/DMSA supposortories with gluthione lotion.

6. DMPS, NAC, GLuthione IV/with gluthione lotion and TTFD lotion.

7. Will try enzymes when detoxing and fungus treatments are done to help enhance gut repair and hopefully

reduce number of food allegries

 

My son has overcome a host of issues since we started the treatments.

Things that have ended were:

1. Not being able to sleep at night.-Changed with supplements and chelation.

2. When finally falling asleep having night terrors.-Changed with supplements and chelation

3. Having behavior that was unpredicatable.- Change with diet.

4. Having Obessive Behaviors- Changed with diet and behavior modification at home.

5. Having severe tics- 95% seem to be gone as of now-changed with chelation.

 

There are other issues resolved as well which I will not post for now but the main thing is that all of the treatments of supplements, restricted diet, epsolm salt baths and fish oil, lotions, and chelation had improved my son's condition. Remember this was a kid who doctors were trying to direct towards meds. and were stating options like special education or home schooling as future options. He is currently in a gifted program and has won a few art rewards. Not bad for a kid who at one time couldn't keep his head straight never mind focus his eyes on anything.

Now this is my kid's story and it will most likely be an ongoing story for damage was done and that damage will need to be regulated and treated but he is successful with alternative medicine/treatments and there is no reason why other kids out there can not also have their ranges of success as well.

[Sydsmom]

Andy,

Congratulations on the successes for your son. Thanks so much for sharing what has worked. I'm all about gleaning wisdom from those who have walked before me. Thanks again.

 

Lisa

[Andy]

Sydsmom.

Hope that you find the right path if you have not already. I do believe that there is no one single treatment and not every treatment will work for every child or person. With the chelation treatments, the research that is out there on mercury removal is based upon autisum and that shows the younger the person the better rate of success. However, the navy which as far as I know developed the DMSA treatments for sailors and base workers who got lead poisioning from painting the ships, the treatments were effective for adults with that metal. This is where the term, "Get the lead out", came from. I would not recommend chelation in the begining but if the tics are not a past family issue but a recent one then perhaps the TS or tics was triggered by outside agents that need to be removed.

[Guest]

Andy,

 

Glad to hear your son is doing well and having success with chelation. I hope you continue to see improvements. Good Luck.

 

Carolyn

[kim]

Andy,

 

It must be wonderful to see no mercury. Any idea why lead reappeared?

 

So happy for you and your family and your ability to restore your son's health.

 

TTFD...skunk smell right?

 

Since you mention ALA, I'm wondering if you have ever read Dana's site? She's a moderator on the enzyme bd. and basically chelated all of her asd kids herself and talks of ALA a lot. Her site is strictly personal accounts, kind of like a running log on her kids experience with different supplements.

 

She has talked of the addition of biotin, substantially helping with yeast control. This caught my attention as my 9 yr. old has had paper thin finger and toe nails since he was an infant, along with turning orange, which now I think was an inability to convert betacarotene properly I keep reading everything I can get my hands on to try to decide if chelation is the only thing that will give my son his appetite back, or if time and less drastic measures will do it.

 

I just finished Evidence of Harm. It reminded me of a ping pong match at times, but one thing was perfectly clear, to me anyway. They went to extraordinary lengths to make data inaccessable, and the remarks from the transcripts at Simpsonwood just make me seeth. They knew the very strong possibility of great harm was there. The statistics on tics, with the exposure levels at the age of 3 months is sickening too. I finally got out the very incomplete vaccine records that my pediatricians office have provided me for school, and see where the Hep B that my youngest son was given the day of birth, gave him about 34.45 times over the EPA's allowable amount, in that 1 vaccine, if, I have the manufacturer right, as it's hard to make out on the record. Two out of three of the Hep B vaccines are in this same range for an 8 lb. infant. One is .84? I can't track many, as the manufacturer is missing on most (along with my consent signature on a few) http://www.nvic.org/calc.htm

 

Sorry to ramble, just thought I would share a couple of thoughts.

 

Kim

[Andy]

Kim you have no idea how mad we were at the hospital for my children getting the hep shot after we told everyone and asked if we needed to sign anything that we did not want our kids to have it. What are they at risk for as infants who are being breast fed from a mother who doesn't even drink wine.

Medicine is needed for a healthy and long life but the attitude of mainstream medicine kills me.

 

The TTDF does stink but the smell reportly is not as bad as it used to be.

But it still smells which is why we do not put in on him in the morning of a school day.

 

I have to look up that website that you speak of.

Most of my information on ALA comes from the DAN paper and other medical research papers related to this topic.

 

My son's appetite increased ten fold after we started the chelation. Before it we used to Bribe/fight him to get him to eat. It was the worse parts of the day.

 

The lead is a puzzle. We have two water cleaning systems in the house and live inbetween the everglades and the gulf but his body is absorbing the lead from somewhere like all of us do but unlike most people his body can not clean itself out by itself.

 

Carolyn, have been reading your posts while lurking and glad to see your successes as well.

My boy is doing so well that it is amazing. Just wished my mom lived to see it for she loved him so much and felt deeply about what he was going thru. He still has some stuff but it is nothing compared to where he was and all of a sudden he is invited to all of these play dates. People have always been nice but most kept their distance till this year.

We just hope that his success continues as we phase out the heavy chelations.

[kim]

Andy,

 

I just posted a link to Dana's website in a post to Sydsmom.

 

I know you get your information from the best research and Dr.s available, but sometimes it's kind of refreshing to read the personal accounts. How this woman has done all of the research she has, and dealt with 3 children with special needs, is beyond me.

 

If I have it right, ALA was pretty much her primary chelator and she obviously is a big believer in it.

 

As bad as the thimerisol exposure was, now I'm afraid we are going to have to cope with additional amounts of mercury in the air. With the oil shortage and all of the possibilities for supply disruptions and growth in emerging countries, the push is on for alternative energy sources, and a lightening of the emission restrictions for the *^%$ coal burning plants is really frightening to me. Personally, they could put a wind fan (or 10) right in my front yard, if it would help to stop the poisioning of our environment and our kids. If only others were connecting these dots, instead of medicating so many kids, we could probably make some progress.

 

Kim

 

http://www.greenpeace.org/usa/news/mercury-report

[Confused Mom]

We came back from South Beach this past Tuesday and reviewed the latest toxic challenge urine test and it appears mercury is no longer detectable. According to the DAN treatments this would mean that we have taken out most if not all of the mercury that was in my sons organs and soft tissues. However, since the lead has reappeared we will delay Stage 2 of the detox by a couple of months till that is resolved again. In stage 2 ALA will be added to the DMPS/NAC/Glututhione IV to hopefully cross the blood brain barrier and pull out any mercury that may be deposited in there. We have done stage 1 detoxing for a year. Stage 2 detoxing on average from what I have read is usually much less time wise.

We have made some changes in the chelation treatments as well. We stopped the DMSA weekend treatments and are replacing it with TTFD Cream to be applied 1 to 2 times daily. The problem is the smell so on school days we most likely will only be giving 1 treatment.

I am a big fan of the chelation treatments but I must remind everyone who has read my posts or any new comer who is reading my posts that it is the second to last step in my son's treatment program.

The other steps were all based on tests as well and included

1. Supplements of vitamins, minerals and amino acids. Also included is fish oil.

2. Restricted diet due to delayed food allergies or intolerance.

3. Epsolm salt baths

4. Probiotics and now included is nystatin to kill yeast and fungus overgrowth in the gut.

5. DMPS, NAC, Gluthione IV/DMSA supposortories with gluthione lotion.

6. DMPS, NAC, GLuthione IV/with gluthione lotion and TTFD lotion.

7. Will try enzymes when detoxing and fungus treatments are done to help enhance gut repair and hopefully

reduce number of food allegries

 

My son has overcome a host of issues since we started the treatments.

Things that have ended were:

1. Not being able to sleep at night.-Changed with supplements and chelation.

2. When finally falling asleep having night terrors.-Changed with supplements and chelation

3. Having behavior that was unpredicatable.- Change with diet.

4. Having Obessive Behaviors- Changed with diet and behavior modification at home.

5. Having severe tics- 95% seem to be gone as of now-changed with chelation.

 

There are other issues resolved as well which I will not post for now but the main thing is that all of the treatments of supplements, restricted diet, epsolm salt baths and fish oil, lotions, and chelation had improved my son's condition. Remember this was a kid who doctors were trying to direct towards meds. and were stating options like special education or home schooling as future options. He is currently in a gifted program and has won a few art rewards. Not bad for a kid who at one time couldn't keep his head straight never mind focus his eyes on anything.

Now this is my kid's story and it will most likely be an ongoing story for damage was done and that damage will need to be regulated and treated but he is successful with alternative medicine/treatments and there is no reason why other kids out there can not also have their ranges of success as well.

[Guest]

Andy,

 

What's your thoughts on ALA? Its another one that I've heard many different things about. I know Andy Cutler's protocol thinks pretty good of ALA and many start using it 3 months after removal of amalgam fillings. That would mean they would only be on either DMSA or DMPS for only 3 months before starting ALA. I personally feel that's way too soon to start ALA. What are you thoughts on that? Cutler's protocol also believes ALA removes brain mercury.

 

On Dr. Neubrander's chat one night a speaker basically said that ALA does not remove brain mercury from what's known. If there was anything that might remove brain mercury, ALA would be the best bet. I've also heard there are concerns about ALA redistributing mercury. The one other thing I've heard is that if you continue DMPS it will eventually get the mercury out of the brain also. I've heard so many different things and don't even know if there is a right answer. What are your feelings about these things?

 

Carolyn

[kim]

I gave some inaccurate info. about Dana. I have not read much of her site, just the messages from enzymes/autism-and most of her responses are breif and to the point.

 

http://www.danasview.net/about.htm

 

About Me, My Family, This Site, and Acknowledgments

Hello, my name is Dana and I am 41 years old. I am an attorney, I am married, and I have four children. I homeschool all four of my children, and I do legal work part time from home.

 

When my second child was diagnosed with autism at age 3, I began searching the internet to learn more about him and who he is, and I was surprised to discover that I also qualified as AS, which I will use here to refer to Autistic Syndrome although I am aware it is used for other uses as well. My third child would probably qualify as PDD, but I have not pursued an official diagnosis for him. My first and fourth child are NT.

[Sydsmom]

Kim

What do all the initials stand for? I know they are certain disorders- but like PDD and NT - what do those mean? I check out an autism site and sometimes I'm totally lost with all the lingo. I'm so out of it

 

Thanks!!

 

Lisa

[kim]

Pervasive Developmental Delay and NT= neuro typical (normal) a lot of times you will see PDD NOS, the NOS=Not otherwise specified.

http://www.google.com/search?hl=en&ie=ISO-...G=Google+Search

 

Lisa,

 

I just want to clarify that my sons have none of these disorders, so I'm certainly no expert, but I am becoming pretty fimiliar with these terms.

 

My boys both stood in a wedding in Dec. No one would have known that there was anything different about either of them, no tics visible. We were very lucky since this was the period of time when my oldest son was up and down with the head shaking flair/staph. They are both generally A-B students, no social problems, nothing that would make sense to anyone, except maybe the people on these message bds, why I would spend so much time learning about autism.

 

I just don't want anyone to have the impression that my kids must have a lot of difficult issues, that probably would not apply to their child. This is not the case. I just find the similarities too hard to ignore, even if it's on a tiny scale comparing my son's issues to the children with these other diagnosis's.

 

Anytime I can try to help clarify anything for you...ask away

 

Kim

[Sydsmom]

Thanks Kim,

 

I get where you're coming from - I feel the same. I check out the autism sites to be informed. My aunt is really involved and shares a lot and I run into people who either have an autistic child or know someone so I just share what I read works and hope they give it a try. Lots aren't open to it but I'm hoping that's changing with books like Evidence of harm and all of those great people involved. Ok - thanks for clearing things up for me!!

 

Lisa

[Andy]

Andy,

 

What's your thoughts on ALA? Its another one that I've heard many different things about. I know Andy Cutler's protocol thinks pretty good of ALA and many start using it 3 months after removal of amalgam fillings. That would mean they would only be on either DMSA or DMPS for only 3 months before starting ALA. I personally feel that's way too soon to start ALA. What are you thoughts on that? Cutler's protocol also believes ALA removes brain mercury.

 

On Dr. Neubrander's chat one night a speaker basically said that ALA does not remove brain mercury from what's known. If there was anything that might remove brain mercury, ALA would be the best bet. I've also heard there are concerns about ALA redistributing mercury. The one other thing I've heard is that if you continue DMPS it will eventually get the mercury out of the brain also. I've heard so many different things and don't even know if there is a right answer. What are your feelings about these things?

 

Carolyn

 

If I remember correctly Dr. Neubrander is from New Jersey and is big on the Vitamin B1 shots. But I may be wrong for it has been awhile since I was reading up on everyone and what they were doing. There are many theories on this matter. Every doctor that I have spoke with on this matter all wish the government would pour some money into researching the different theorys. Basically the theory tends to fit the specialization of the doctor. A doctor who is doing chelation detox may follow the theory that if you remove all of the heavy metals out of the body then some may move out of the brain to the body. Not a favorite of mine. Another theory is that if you use ALA, ALA will get the mercury out of the brain area but you then would need the DMPS or DMSA or EDTA to move it out the body. Sounds pausable to me. Another theory is to stress the B1's and gluthione to help the body to naturally remove the metals from the body and perhaps the brain blood barrier areas as well.

 

We have done the first one when we detoxed his body of mercury in the soft tissues and organs and it leads to phase II of detox, we are doing the third one with creams so it is a longer process and we are planning on doing the second one which means we are trying everything and hoping for the best.

[Guest]

Thanks for the info Andy, Yes, Dr. Neubrander is from New Jersey, but is big on vitamin Methyl-B12 shots instead of b1.

 

Carolyn