KPU CORE Treatment

[Suzan]

dd8 has been on 3 CORE pills now for a couple of weeks. Overall I think it's going well. She has not been getting anymore pimples around her body... well, she does have one on her arm trying to come out so maybe it's just slowed. Her hand writing gains seem to have slipped and she's not doing as well with her orgainzation or math skills. She's been having nightly tummy aches and her food OCD is getting worse again.

 

Of course I worry about the detox from our last conversations about it. Last night, after her epsom salt bath, she was crying and obviously distressed. Her tummy hurt, body ached and she said it felt like her legs weren't even there. I gave her some ibuprofen and benadryl and Tums. This seemed to calm everything down.

 

This weekend I'm goning to get more clay (we ran out). I wish I had more professional detox help. I continue to believe that we are on the right path and this is helping. It's the most movement in her symptoms we've had in a year. Trying to be patient.

 

Susan

[momcap]

Last night, after her epsom salt bath, she was crying and obviously distressed. Her tummy hurt, body ached and she said it felt like her legs weren't even there. I gave her some ibuprofen and benadryl and Tums. This seemed to calm everything down.

Susan

 

We're not doing KPU, but I when DS8 is not feeling well he also complains that it feels like he has no legs. Weird!!! What does that mean? It scares me.

[LNN]

I was wondering how DD was doing. We've held at 2 and things stabilized. Then added some other minerals (magnesium, taurine - away from abx) - can't tell if they've done much or if time alone has helped things settle.

 

One thing that struck me is that you're using TUMS. Tums has magnesium, which can interfere with the absorption of some abx. Be careful of the timing.

 

In bad times, we've also found it more helpful to dose regularly with an NSAID rather than as needed. It keeps things from ramping up. I try not to do it for more than a week steady, then I usually taper if I can. But while in the middle, motrin every 6 or 1/2 aleve every 8.

[Suzan]

I was wondering how DD was doing. We've held at 2 and things stabilized. Then added some other minerals (magnesium, taurine - away from abx) - can't tell if they've done much or if time alone has helped things settle.

 

One thing that struck me is that you're using TUMS. Tums has magnesium, which can interfere with the absorption of some abx. Be careful of the timing.

 

In bad times, we've also found it more helpful to dose regularly with an NSAID rather than as needed. It keeps things from ramping up. I try not to do it for more than a week steady, then I usually taper if I can. But while in the middle, motrin every 6 or 1/2 aleve every 8.

 

Regarding the Tums, I give it at least 1 hour before abx or in the evening when she currently is not taking any. I hope the 1 hr before is enough, what do you think? I gave her ibuprofen this morning too. I think I will give it to her for a while.

 

s

[Suzan]

We're not doing KPU, but I when DS8 is not feeling well he also complains that it feels like he has no legs. Weird!!! What does that mean? It scares me.

 

Oh weird!! It scared me too. I dont' know what it means. I hot footed it to he kitchen to find something to maybe help her! It must be a sensation that they don't know how to describe. Just yesterday I was telling someone that my elbow felt queazy like sick to my stomach but in my elbow. They thought I was crazy.

[LNN]

Just yesterday I was telling someone that my elbow felt queazy like sick to my stomach but in my elbow. They thought I was crazy.

 

Ummm. Susan? You are crazy. That's why you're here.

 

re: tums - I'd ask your pharmacist. I read somewhere 2 hrs. But pick your battles. The girl has to be able to eat. Tried to see if pepcid has the same issue but it wasn't clear. But it lasts longer, so maybe could be given earlier in the day and still be effective. Maybe ask the pharmacist what your best option is re: product and timing.

[Christianmom]

My son has been on KPU treatment for about a week, and we are very pleased with the slow but noticeable improvement in his OCD. He has not had any stomach issues (but stomach issues are not normally a problem for him either). My naturopath is treating the KPU and he did not feel comfortable with the the CORE (only because he was not familiar with the manufacture) and chose these two things instead:

 

1. Total Omega Pome/Blueberry Swirl 16 oz by Barlean's Organic Oils -- 1 Tbsp./day

2. Nutrient 950® w/o Cu, Fe & I 180 vcaps -- 6 caps/day (worked up to this--started with 1 and upped 1 every other day until we reached 6)

 

So I am not familiar with CORE, but wanted to let you know that there were other options.

[JuliaFaith]

When and with what does your daughter take the CORE? When my son started on CORE, it was advised (by doctor) that he start with 2 capsules with a large meal (lunch or dinner) and work up to 4 'as tolerated.' Also, to watch for stomach upset. If this is happening, you may want to go back down to 2 for a while and see if that helps.

Edited October 14, 2011 by JuliaFaith

[Suzan]

It's been a month since our last critical time with our KPU treatment. I pushed through last month and increased detox and things eventually calmed down. dd9 (she had a birthday) has been feeling much better and although she still looks wane and small, her emotions and outbursts and tummy aches had camled down and her handwriting was improving again.

 

I decided I'd try one day of 4 CORE pills and see what happens. That was yesterday. By the evening she was crying that she hated her life and she just wanted to be normal. She was falling down and hurting herself and just overall unhappy. Today she is having fits of crying and dispare for no apparent reason and is overly whiney and miserable one minute and just fine the next.

 

It amazes me how quickly she responds to an increase in CORE. I plan on sticking to 3 pills now until next weekend and then try 4 again. I have no idea when to stop treatment but my plan is to get to 4 pills and hold that for 4 months I think.

 

I take her to see our new wellness doctor on Wednesday to review the methylation cycle, metals, etc. I'll post our complete update on him after we all have our first appointment and have a plan in place.

 

susan

[LNN]

Let me know what your doc says about methylation. I just finished my first reading of Yasko's book. Will now go thru it with more detail. Will be good to compare notes.

 

DS struggled when we went to 3 Core - we backed down to 2 for several more weeks. But then we bumped from 3 to 4 with no issues. When we bumped the second time, I had started supplementing with taurine and magnesium and added a second milk thistle several weeks prior. Don't know if that had any impact. I also backed off clay (reduced from 5 capsules/ 1tsp to 1-2 capsules) and added 1 g psyllium husk - that has really helped both kids become more regular, which I personally think is at least as, if not more important than a binder. Doesn't do any good to bind stuff and then have it not move out of town. So for the moment, psyllium husk is trumping clay in the pill department.

 

As far as how long she may be stuck with Core, I think my kids may be life-long. We're doing labs tomorrow but if they end up having genetic defects in methylation, we'll need to supplement various vitamins/minerals/amino acids for life, long after lyme is history. But that sure beats a life of OCD and dysfunction.

[Suzan]

As far as how long she may be stuck with Core, I think my kids may be life-long. We're doing labs tomorrow but if they end up having genetic defects in methylation, we'll need to supplement various vitamins/minerals/amino acids for life, long after lyme is history. But that sure beats a life of OCD and dysfunction.

 

Which testing are you doing for the genetic defects? Let me know how those tests come out. I totally agree about lifelong supplements beating what you have been through so far!

 

dd9 had a good day but really struggled this evening. After she got through it she thanked me for helping her. She knew she was stuck in some crazy thing in her brain. It breaks my heart.

 

Susan

[LNN]

We're testing their MTHFR gene. Not sure how long it takes to get results. I would also like to test a few other genes but not sure how expensive and what insurance will or won't cover. So will test the waters with this one first.