Pandasmex Posted October 3, 2011 Report Posted October 3, 2011 Hello everybody! I feel like a spy because for the last months I've been reading some of your posts, trying to get some help or support I did....thank you all!!! Today I feel like sharing my only child story through this devastating illness because I feel strong enough to do it. It's a long, long story but I will try to make it short. Santiago (13 y/o) is a beautiful, brilliant and lovely boy and he has pandas since a year and a half. My husband and I think that he has had some OCD issues since long ago... In march 2010 he was a normal child but after a respiratory infection it seems that my DS was kip napped by aliens (you all know the symptoms) and returned with severe OCD and Tourette. In a few weeks he couldn't touch anything at home including his parents, he was not able to go to school, stop eating from my kitchen, using gloves and a mask, etc... We saw many specialist in Mexico city and nobody helped us. He was under therapy and taking SSRI without improving. One psychiatrist told me he had schizophrenia, I felt terribly sad and desperate my DH too. We had to sell our "new house" to give my DS relief and also because of medical expenses.d In that summer we traveled to The OCD Foundation's conferences at Washington and there we knew about pandas. It was amazing DS fit almost in all the criteria. Since then we been like in the middle of a tornado. We saw Dr. L and also Dr. K (both excellent professionals) DS already had PEX at Georgetown university hospital, HD IVIG in Mexico and of course antibiotics. We also have a good team of doctors involved here in Mexico (a neurologist and inmunologist) working and learning together with us. Actually DS is beginning to improve like baby steps and I feel in my heart that we are going in the correct way. Everyday I pray for Santiago though I don't forget all our pandas children.... My husband will attend to the Texas Symposium into two weeks. I hope he will meet some of you and say hello in my name. Thank you!!! Again and keep strong!!!
dcmom Posted October 3, 2011 Report Posted October 3, 2011 Welcome Pandasmex! Glad you joined! We met in DC. Hope the pace of improvement picks up for Santiago!
Pandasmex Posted October 3, 2011 Author Report Posted October 3, 2011 Thanks Eileen! Nice to hear from you...how are your girls doing? Elva
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