Borrelia Miyamotoi

[momcap]

There's been news lately about a "new" borrelia in North America. I'm finding this very interesting. According to a Russian study, this borrelia is not associated with a bullseye rash, and it causes very high fevers that relapse. This sounds like my kids! The first autumn after moving to our farm they got sky high fevers (up over 106 and rushing to the E.R.) This happened on and off that whole winter. I wonder... But they test positive to borrelia burgdorferi, so I guess it doesn't really matter. I just wonder if the treatment and outcome is any different, or if they could have both? Any thoughts? Do any labs offer tests for different strains of borrelia?

 

 

http://www.healthzone.ca/health/newsfeatures/article/1060669--new-tick-borne-disease-discovered-in-canada?bn=1

 

http://www.nytimes.com/2011/09/20/health/20tick.html

 

wwwnc.cdc.gov/eid/pdfs/10-1474-ahead_of_print.pdf

[susie]

Do you think the fevers were related to the lyme? My daughter used to get high fevers with no other symptoms that would last for days. One time she had a fever that would spike to 105 when the ibuprofen wore off and this went on for 10 days. She had no cough, sneeze, or any other symptoms except malaise from the fever. I've often wondered what that could have been. Doctors were clueless.

[momcap]

Do you think the fevers were related to the lyme? My daughter used to get high fevers with no other symptoms that would last for days. One time she had a fever that would spike to 105 when the ibuprofen wore off and this went on for 10 days. She had no cough, sneeze, or any other symptoms except malaise from the fever. I've often wondered what that could have been. Doctors were clueless.

 

My boys were the same - no other symptoms, so the docs kept saying it's something viral and we should just let it run its' course. Maybe it was viral, but I'm also wondering about lyme, or babesia, or ehrlichia. I wish they would have been put on a course of antibiotics back then, just to be safe. Now here we are 4 years later with chronic illness and treating with long-term, high-dose abx. I wonder if this could have been preventable. But I guess there's no use speculating. I just thought it was an interesting possibility.

[Familyof5]

Just a quick question.... as my "mold" radar peaked when you wrote "ever since we moved to farm house"...have you ever thought of mold that may be chronic in your farm house? If illness corresponds to your new environment, in more than one family member, I would suggest investigating toxic mold as a cause of illness. There are blood tests that you can have done to confirm.

[momcap]

Just a quick question.... as my "mold" radar peaked when you wrote "ever since we moved to farm house"...have you ever thought of mold that may be chronic in your farm house? If illness corresponds to your new environment, in more than one family member, I would suggest investigating toxic mold as a cause of illness. There are blood tests that you can have done to confirm.

 

Oh yes, mold is on my radar, and I know I have to investigate that sooner than later. My house is 1800s and has a stone foundation, which means water runs right through the dirt floor "basement". Half the plumbing runs to a sink hole in the dirt basement. Yup, mold issues guaranteed. The one thing that doesn't point to mold is that "this" (PANDAS, lyme, bart, whatever) all started for my PANDAS DS at our previous home which was all hardwood floors, air filtration system, etc. The younger 2 boys only got sick after our first summer here, and that summer our pets kept getting ticks. I never saw any on the kids, but one cat got sick and died, and our young dog turned "old" overnight. I wish I had saved and tested the ticks, but I didn't know ANYTHING about lyme back then in 2007. I just picked them off and killed them in rubbing alcohol.

 

I'm sure my ancient moldy house can't be helping the situation at all, but I do think my kids got exposed to lyme here. We moved from the city and now run around in long grass and through the deer trails in our back bush. We didn't know anything about lyme. Ugh. The younger 2 boys have almost identical western blot bands. DS8's bands are totally different, but he's been sick since birth so probably congenital. Looking back, I'm sure I've had it since I was 12, but again, knew nothing about lyme, so I had no clue.

 

What are the blood tests for mold? My kids have to have monthly blood draws with the high-dose antibiotics. Maybe I can get the doc to run the mold tests next month.

[Familyof5]

Just a quick question.... as my "mold" radar peaked when you wrote "ever since we moved to farm house"...have you ever thought of mold that may be chronic in your farm house? If illness corresponds to your new environment, in more than one family member, I would suggest investigating toxic mold as a cause of illness. There are blood tests that you can have done to confirm.

 

Oh yes, mold is on my radar, and I know I have to investigate that sooner than later. My house is 1800s and has a stone foundation, which means water runs right through the dirt floor "basement". Half the plumbing runs to a sink hole in the dirt basement. Yup, mold issues guaranteed. The one thing that doesn't point to mold is that "this" (PANDAS, lyme, bart, whatever) all started for my PANDAS DS at our previous home which was all hardwood floors, air filtration system, etc. The younger 2 boys only got sick after our first summer here, and that summer our pets kept getting ticks. I never saw any on the kids, but one cat got sick and died, and our young dog turned "old" overnight. I wish I had saved and tested the ticks, but I didn't know ANYTHING about lyme back then in 2007. I just picked them off and killed them in rubbing alcohol.

 

I'm sure my ancient moldy house can't be helping the situation at all, but I do think my kids got exposed to lyme here. We moved from the city and now run around in long grass and through the deer trails in our back bush. We didn't know anything about lyme. Ugh. The younger 2 boys have almost identical western blot bands. DS8's bands are totally different, but he's been sick since birth so probably congenital. Looking back, I'm sure I've had it since I was 12, but again, knew nothing about lyme, so I had no clue.

 

What are the blood tests for mold? My kids have to have monthly blood draws with the high-dose antibiotics. Maybe I can get the doc to run the mold tests next month.

 

 

 

This website has TONS of information on mold, blood tests, VCS vision test as a screening for possible mold illness. Also, this doctor treats lyme as well as mold illness which are virtually identical illnesses in their symptoms. So much info on here that is explained much better than I ever could. BUT...basically my entire family became ill in our toxic home. All three kids presented with tics (motor and vocal), floaters in vision, headaches, memory loss, chronic sinus, viral, and ear infections, frequent urination, tinnitus, OCD, ADHD, sleep apnea, I was misdiagnosed with MS, chronic fatigue, fibromyalgia, lyme, etc (I could go on and on with the list of symptoms)....then we found mold and the symptom roster has decreased by a ton (kids haven't been to doc except for well visit in 2 years!) since we moved out of moldy house. Check out the website, if you have mold in your home it is definately compounding your health issues and should be addressed as you'll never get well with mold in your home.

 

http://www.survivingmold.com/