Tics and their pattern.

[Baylor]

Just got a call from DS's teacher.. that he has a completely new noise.. Like a frog gulp.. He has been doing it at home along with the jaw clicking but she says this new gulping has pretty much taken over at school and he has stopped the clicking.

I am not sure if this is a coping thing, or the nature of Tics.

 

Today we had to go back for more blood because last week they did not get enough. So I am hoping for results in a day or so?

 

I just can not help the way I feel about this. I don't want my child to have any disease or condition however, If PANDAS can be cured that is what I want him to have. The thought of him dealing with this for life is overwhelming.

 

DH is in the middle of a flare up with MS and I am tired.. Calgon take me away.

[airial95]

I'm sorry that you're dealing with so much, with your husband too. Our thoughts and prayers are with you.

 

My son's tics do "morph" over time. He seems to rotate between 3-4 familiar tics that we've seen, alwyas only having 1 at a time. I don't know what makes one of his tics more prevalent than the other, but one usually fades out as another sets in.

 

I don't know if others have had the same experience, but we have seen the same thing you have as far as one tic replacing another.

[MichaelTampa]

Just wanted to point out that some people in the lyme disease community believe that MS is always or almost always a result of lyme disease. I particularly wonder in that I was diagnosed with TS before I considered if maybe I had PANDAS and then ultimately realized I had lyme disease, so I know first-hand how lyme can be misdiagnosed as TS. As lyme disease is infectious, it makes me wonder if you have considered if you have lyme disease in your family.