KaraM Posted August 9, 2011 Report Posted August 9, 2011 So, my dd9 has been treated for PANDAS since 3/10 and Bartonella since 3/11. Her primary symtpom is germ contamination fear OCD. In the past, whenever anything hit the floor, it would become contaminated...no one could drop anything or place anything on the floor. Anyway, she's been improving slowly over the past several months...two steps forward, 1 1/2 back...you know the drill. Last week I posted she was around 80 - 85% better. I'm going to bump that up a bit. Today, her Minocyline pill (for recent Ehrlichiosis diagnosis) fell on the floor...She initially said she couldn't take it, but I said we didn't have enough for her to waste it. So, she said, "oh well, I guess I have to to take it," and popped it in her mouth. On a different note, last week I had asked about herxing with Ehrlichiosis treatment, since I was trying to time the introduction of minocylcine so any herxing didn't interfere with family visiting from California. She had a little bit of hyperactivity and was somewhat "uninhibited" (i.e. crude comments, grabbing my breast), but that only lasted a day or two. She didn't have any physcial symptoms of Ehrlichiosis. So, I'm feeling optimistic that we are coming out of this. Hopefully I am not jinxing her/us. Kara
mama2alex Posted August 10, 2011 Report Posted August 10, 2011 I loved reading this post. Those obvious breakthroughs feel SO GOOD, don't they? Thanks for sharing this news, and NICE WORK!!
cobbiemommy Posted August 10, 2011 Report Posted August 10, 2011 Great news! It's those little moments that really let you know you're on the right path!
momaine Posted August 10, 2011 Report Posted August 10, 2011 Thanks for sharing....my dd too, is slowly...responding to lyme/bart treatment!
KaraM Posted August 10, 2011 Author Report Posted August 10, 2011 Thanks, everyone! Momaine, glad to hear your dd is heading in the right direction as well. It was a rocky start for us, but after the first month of treatment, the line seemed a little steadier (but still slow). Keep the faith! Kara
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