Please help

[Momto2]

Hi,

 

I was wondering if some of you could offer some insight. This is about our 5 year old daughter, we don't have any diagnosis yet, but I am really concerned she may have TS. Here is what has been happening:

About 6 weeks ago, she started shaking her head back and forth and also occassionaly sticking her tongue out and flapping her hands. (I should also mention she has sensory integration disorder). Her OT thought this was sensory-related, so we increased some therapy for her and it stopped in less than 2 weeks. Then about a week later, she began having strange stomach movements/jerks. She is still doing this. Again, her OT said it is probably her way of soothing herself. While this was happening she had her 5 year check up and her ped. also thought sensory issues. So..........now she is having strange facial movements, sometimes her head and eyes roll back. At times she seems aware of this, other times she doesn't. I can't tell if she has any vocal tics yet, she has always been a rather noisy child. Our daughter is adopted, so we have no medical history on her. What should I do next? I am talking to her ped. tomorrow, but what type of doctor should she be seeing for this? I hope this makes sense, I am pretty upset right now.

 

Thank You.

 

Amy

[Sydsmom]

Hi,

Welcome!! I want to commend you for trying to find out how to help your child. I ignored my daughter's symptons for 5 years - she also started at 5 and it wasn't until she was 10 that I did anything about it. It is soooo overwhelming at first, but trust me and other parents here, it does get better. One day at a time. Did you read Claire's post for newcomers just below? Please do, again you may be overwhelmed but take one step at a time. I took my daughter to a DAN! doctor who does natural therapy. She is on supplements and dietary restrictions and her tics are a little better - it depends on her stress. I was a stressed out working mom who didn't balance very well so the first thing I did was quit my job and God has provided more than I could've imagined. Other more experienced will guide you here, look through old posts and please know that it can get better. My daughter used to talk about wanting to die and go to Heaven - she was soooo depressed and now that depression is mostly gone and she smiles like she did when she was a little toddler. I feel like I have her back!! Goodluck to you!