Burnell Posted July 22, 2011 Report Share Posted July 22, 2011 My daughter age 12, has OCD and was diagnosed with PANDAS by Dr. Triffelitti in October 2010 and was accepted into the NIH Clinical study on PANDAS in March 2011. The NIH study resulted in her receiving IVIG in May 2011. Her OCD involves touching and tapping such as doors, walls floors, and the ground. The main thing that sets her off bad is when she sees her 10 yr old brother touch or hold anything, such as a fork, stuffed toy, glass, computer game, etc. Then she must touch that same object right away so he must hand it to her. He just loves it, NOT! At the worst, she touches all day, but at night are worst sometimes taking 3 -4 hours of wandering around the house doing the touching before going to sleep. At best, at the end of June 2011, she was mostly touching things at night and only for a quick 10 minute trip around the room before bed. The past week, her OCD has come began to grow more often and longer than in June. The NIH doctors have recommended she begin Cognitive Behavioral therapy. We saw a therapist in Lancaster PA, who said our daughter needs intensive OCD treatment. Most of the places with that do it over a 3 week period. Does anyone have experience or knowledge with an OCD treatment for adolescents such as University of Pennsylvania OCD Clinic with Dr. Foa - Anxiety Solutions in Maine with Dr. Fitzgibbons - Or the Univ of South Florida OCD treatment with Eric A. Storch - Or at any other intensive treatment center such as at Yale, NYC, or Wisconsin? Thank You. Link to comment Share on other sites More sharing options...
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