update

[eljay1]

Just thought I would give a brief update on my son post ivig. He had an infusion with Dr. B. on June 22-23. A couple of weeks before the infusion, we got the results that he tested postive for a lyme-coinfection. We decided to continue with the ivig and are seeing a lyme specialist at the end of this month. My son has major yeast issues and seems to be allergic to almost all foods. We did pretreat with steroids and motrin/benedryl (I am very aware of all the risks with the steroid usage, but chose to use them anyway). DS did great with the ivig-- a little headache during the infusion, but overall uneventful.

 

Post ivig, he continued to get headaches for a couple of weeks. He also seemed to catch a bug at the 2-3 week mark. His allergies are just as bad (if not worse--maybe because of the yeast/steroid use). He seemed to really improve with behavior adn energy level from the very start. We have had a lot of ups and downs since then, and with all of the health issues involved, I am not too sure how clear the picture will be for awhile. We are planning to continue to fight each infection, repeat ivigs, and tackle the lyme/co-infections as they unfold. Thanks to everyone who posts--I have found such helpful info on this forum! Continue to press on!

 

Jennifer

[momaine]

Jennifer, sounds like you are on the right track. Best of luck to you with the LLMD. My dd took a while to improve after starting lyme/bartonella treatment, but is finally doing better. Hang in there. For us, the lyme treatment combined with IVIG has been helpful.

 

I hope it is for you as well.

[kimballot]

Jennifer - Great job!! Keep on moving forward!! I like your plan - sounds well rounded and practical.

[thenmama]

xx

Edited March 26, 2013 by thenmama

[eljomom]

Hi Jennifer-

Can you tell me who did your Lyme testing/co-infections? Also curious who Dr. B sends patients to for Lyme treatment.

Thanks!

 

quote name='eljay1' timestamp='1310658670' post='117000']

Just thought I would give a brief update on my son post ivig. He had an infusion with Dr. B. on June 22-23. A couple of weeks before the infusion, we got the results that he tested postive for a lyme-coinfection. We decided to continue with the ivig and are seeing a lyme specialist at the end of this month. My son has major yeast issues and seems to be allergic to almost all foods. We did pretreat with steroids and motrin/benedryl (I am very aware of all the risks with the steroid usage, but chose to use them anyway). DS did great with the ivig-- a little headache during the infusion, but overall uneventful.

 

Post ivig, he continued to get headaches for a couple of weeks. He also seemed to catch a bug at the 2-3 week mark. His allergies are just as bad (if not worse--maybe because of the yeast/steroid use). He seemed to really improve with behavior adn energy level from the very start. We have had a lot of ups and downs since then, and with all of the health issues involved, I am not too sure how clear the picture will be for awhile. We are planning to continue to fight each infection, repeat ivigs, and tackle the lyme/co-infections as they unfold. Thanks to everyone who posts--I have found such helpful info on this forum! Continue to press on!

 

Jennifer