insurance coverage for IVIG

[cynditk]

Hi,

 

Who has had success, and with which doctors, in getting high dose IVIG covered by insurance? 1 gram of IVIG per kg weight is considered high dose. My son has a diagnosed immune deficiency and sees an immunologist for that but his immunologist doesn't know about PANDAS and won't recommend high dose IVIG for him at this time.

 

Thanks,

Cyndi

[momaine]

Hi,

 

Who has had success, and with which doctors, in getting high dose IVIG covered by insurance? 1 gram of IVIG per kg weight is considered high dose. My son has a diagnosed immune deficiency and sees an immunologist for that but his immunologist doesn't know about PANDAS and won't recommend high dose IVIG for him at this time.

 

Thanks,

Cyndi

Dr. B in Ct is good at finding reasons for coverage. 17 vials of blood draw after that first apt. My dd has gotten 1.5g/kg and more recently 1.7g/kg with him. We've had two different insurance companies.

[Dedee]

Most consider 1.5-2.0/kg to be high dose PANDAS protocol. This is given over two days. We were not able to get our insurance to pay. We are still under appeal but we decided to go ahead and pay out of pocket because our daughter was so severe. She weighs nearly 60 lbs and our total was about 7K for the entire process (We did the 2grams/kg). Totally worth it from our perspective. Good luck with the insurance.

 

Dedee

[kimballot]

I think United Health Care covers for "PANDAS" - all the others will often cover if there is immune deficiency... some more easily than others.

[butterflymom]

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Edited October 8, 2015 by tampicc

[3boysmom]

Dr. B.'s office has been battling our BCBS of Texas for about 6 weeks and we were denied. We are going to pay out of pocket anyway, but then continue the battle!!!

 

Good luck