cynditk Posted July 12, 2011 Report Posted July 12, 2011 We got an appointment for end of September. Does she do long-term antibiotics, are kids going into remission who treat with her, and does she get reimbursement from insurance for IVIG? Trying to decide whether I should wait for her until end of September, or travel and see someone else sooner. We live in the Seattle area, my son is treating with a local DAN who has no expeience with PANDAS, he is currently on antibiotics- 1000mg Zith daily-also steriods, for past 3 months-he'd doing better but still mostly housebound, no school since April. He is already dx'ed with immune deficiency and also does treatment for this with IVIG, though not as high dose as he would need to treat PANDAS. Still very sick, need to get tested for Myco and Lyme to figure out why he is so sick in addition to the the PANDAS
rowingmom Posted July 13, 2011 Report Posted July 13, 2011 (edited) If you think your son has lyme, he should probably not be taking steroids. Edited July 13, 2011 by rowingmom
cynditk Posted July 13, 2011 Author Report Posted July 13, 2011 Thanks, I only recently became aware of this, we are weaning him down now.
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