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Posted

we are being referred to a pediatric neurologist in the Cleveland Ohio area. Anyone know of one who specializes in PANDAS? figured there might be one at the Cleveland Clinic but dont know ?

Posted

Dr. Neveda Reed at Kidslink (you can google it) in Twinsburg is a ped neurologist that has seen many PANDAS cases and believes in it. Depending on your situation this may be a good place to start. She tends to serve children with autism a lot but will I know she has seen others on this board some without autism. She is out of network and does not take insurance but she is well worth it to me. PM me if you want more info. We have since gone on to get a Lyme diagnosis and it is great to have her on our team.

Posted

Dr. Neveda Reed at Kidslink (you can google it) in Twinsburg is a ped neurologist that has seen many PANDAS cases and believes in it. Depending on your situation this may be a good place to start. She tends to serve children with autism a lot but will I know she has seen others on this board some without autism. She is out of network and does not take insurance but she is well worth it to me. PM me if you want more info. We have since gone on to get a Lyme diagnosis and it is great to have her on our team.

 

a doctor that does not take health insurance? confused?

Posted

We see Dr. Reed-highly recommend. I sent you a PM...check your messages!:)

 

Oh and for the insurance questions, she would be considered an "out of network" doctor. Their office is helpful with completing necessary forms to turn in to your insurance, you have to pay up front, then submit. It was well worth the cost for us (although our out-of-network deductible isn't too bad.).

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