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Posted

I know this is kind of odd (but so have all his symptoms been, and it turned out they were definitely related to TD's)

 

My DS15, who is still on the IV abx, because we've been getting such amazing results, noticed today that he has a mole on his upper lip that is apparently going away. Honestly, I thought it was a pimple (it looks like that now), but I have pictures of him every year from the day he was born on the wall, and he pointed out that it started in 4th grade...you can see a definite mole in that spot.

 

Anyone have any idea what, if anything, this could be related to?

 

Just to remind you all, he has:

 

1) tested mildly positive for Erlich, and definitely has the clinical symptoms (headache, muscle pain, stomachaches...which have gotten about 90%-100% better since starting the IV)

 

2) has his stretch marks about 80% gone at this time that he's had for several years (started going away about 2 days after starting cleocin IV), so that pretty much verifies they're bartonella)

 

3) had clinical symptoms for babesia (elevated liver enzymes, enlarged spleen, and low WBC.) Liver enzymes are down substantially from where they were, but are starting to creep up again (I'm calling the LLMD tomorrow about that, too). Spleen and WBC appear normal.

 

He also had sudden onset in 2nd grade (age 8) with sinus infection in ethmoid sinus, and has had a ton of strep infections over the years. When we started the IV abx, he also had elevated ASO titers again.

 

 

Also, he's started complaining about tingling in his feet (this evening), and also said that he was noticing some tingling in his hands yesterday. He's on IV flagyl and IV cleocin. I looked up side effects, and it says to call the doctor with these symptoms (for flagyl). I will in the a.m., but have any of you had these, and it turned out to be a herx?

Posted

My ds10, Pandas, and Bartonella had small moles, flat and under the skin, around his mouth for about 2 years. We were told they were moles by dermatologist and tried all kinds of treatments but they did not go away. We started azith, Tindamax, and Bactrim and they festered into sores and opened up and went away - all in two weeks. I took pics and sent to Dr J and he said he wasn't sure if it was lyme rash, but it had become impetigo. He had us use bactrim cream but we never needed them. We also had all of his above skin warts (20+ clustered in about 3 places) totally go away and stay away. Interesting, huh? My dd12, also same profile, has been talking about a tingling like feeling in her feet only when without shoes.....she now has to keep socks or shows on, also having lots of headaches and increase in panic attacks. I am thinking it is the immune system finally kicking in and fighting cyst form lyme....we are 4 weeks post-ivig on her. Interesting, the similarities.

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