Tapering off Steroids...Is there hope?

[Wilma Jenks]

I saw the steroids start to make her aggressive, which is normal, I hear.

I saw very very small improvement.

 

She was able to get herself dressed for bed before 2am , which she usually can't do...because there are so many rituals. I see the constant repeating of the same sentence over and over calm down. She was able to take a shower a couple of times. She NEVER showers because of intrusive thoughts "constantly pulling her away." She still flops around in bed all night and does some rituals throughout the night, but perhaps the steroids are getting in the way of sleep too. She sleeps very late in the day because she is up all night. Sleep deprivation has never worked for her. You can keep her in gymnastics all day long for weeks, and she still does not get tired. I gave up trying to wake her at the crack of dawn to see if I could tire her out. She just yells that her brain is on fire. :0(

 

Do you think even this small improvement is a good sign????

[Wilma Jenks]

Can't wait to hear some good news.

[kimballot]

Do you think even this small improvement is a good sign????

 

Wilma, It sounds like, overall, you have seen some improvement. I am keeping my fingers crossed for you. Be sure to write down all you notice... that will help you evaluate if this is working!