Do you tell your mainstream Docs about LD dx?

[ShaesMom]

During the next three weeks dd has appts with a Neurologist, her GI, ENT, & her Ped. With all the drama and political atmosphere surrounding LD I'm wondering if I even want to mention Lyme to any of these Docs. I don't want any red flags to pop up for insurance but on the other hand it seems negligent on my part to not mention it. I feel like I need to be very careful......

 

What do you do????

[smartyjones]

there was a little bit of discussion about this a few months ago. i don't know how to really link it but this is the name of the thread. . .

 

What info do you share with "regular" doctors? Do you tell them you are being treated for Lyme?

[momaine]

I was a little worried the other day when we went to our family dr. We hadn't been in a while and although she had accepted the PANDAS diagnosis, I was a little concerned about her accepting a lyme diagnosis on top of that because I had emailed her asking if she would order an Igenex western blot for me and I never heard back despite 2 phone calls and an email.

 

But then when we went there, she was fine about it. She really does what she can to help us with whatever we are asking, but leaves the PANDAS/LYME to our specialists. She was open minded about the existance of chronic lyme but not really into learning more about it, at this point. But I'm okay with that as long as she helps us with what we need at the time.

 

So, my point was, in all this rambling, that I was worried that it wouldn't go well, but in the end, it was fine.