Lyme in the Gut

[LNN]

You may have already seen this before, but just in case, you may find it interesting

 

http://www.lymeinducedautism.com/images/Belle_s_Palsey_of_the_Gut.pdf

[ShaesMom]

Too funny! I just finished reading this from the link on Lymenet!

 

I'm going to print it out and take it with to her next GI appt in Cincinnati next month! Hopefully he will have an open mind-especially if her scope does not come back clean.

 

It definitely seems to fit my family to a T since myself, my ds and dd all have the same GI issues. I also found the part about encopresis extremely interesting since dd has had severe chronic constipation & encopresis since age 2 that nothing has been able to fix (and its putty like). I'm so sick of Doctors telling me that she needs to "sit on the potty for 10 minutes after every meal."

 

I've been trying your techniques for CBT. I haven't been very successful but I'm going to keep trying. Her therapist is on board and trying to help as well.

[LNN]

Hey - that's where I got it from - must've been reading at the same time!

Re: the CBT - it's possible the rages are too big for a first step. Are there other behaviors you want to work on?

My son immediately "got" the concept of good voice on one shoulder, bad on the other. But my daughter didn't see life that way. So for her, we invented fairies and angels. Fairies are mean and want you to give them all of your attention. So they trick you (fairies are OCD and sensory thoughts). They make you worry about things, feel uncomfortable in your clothes, and distract you from doing the things you want to do. Angels, on the other hand, are good and want you to be happy/yellow inside.

 

So we have the sock fairy - the one who makes DD cry because the seams on her socks feel uncomfortable. The Underwear fairy, who tells DD that underwear is uncomfortable. The wet fairy, who makes DD freak if her sleeves or clothes get wet, so she won't wash her hands without getting naked...at one point, we had more fairies living in the house than we had people. Just before starting kindergarten, DD was having trouble wearing underwear. So we told her she had to just put a pair on and could then take them immediately off. This would make the underwear fairy really mad and show her that DD was learning to be the boss. We did this for a few days. Then we worked up to wearing underwear for 5 minutes, which made the fairy see red. (DD gleefully drew pictures of red-faced fairies). Then 10 minutes a day, then an hour, then for the whole half-day kindergarten session (and she could take them off as soon as she got home). Now...the underwear fairy is history - she had to move and find a house where some other kid was afraid of her, because DD was "so done" with her mean tricks.

 

So maybe make a list of behaviors - a hierarchy. Then start with smaller ones and break things down into steps. Change the behavior for 30 seconds, then a minute...Once she gets a few successes under her belt, then maybe work on the rages and those triggers. I know, the rages are killing you and you need those to go NOW for the sake of the whole family. So these ideas won't bring you immediate relief and you'll still need the medical angle. But over time, CBT becomes a more and more powerful tool - you just have to practice a ton - and fail a ton - before it becomes comfortable. We're currently battling the "sad for no reason" fairy - so it's not like poof- and they're all gone. But it gets much easier and many times, DD can do it by herself now.

 

Read "What to do when your brain gets stuck" for some background. It's about OCD but you can use it for sensory and rages and other things too. You're welcome to PM me with specifics and we'll see if we can brainstorm...

[ShaesMom]

Read "What to do when your brain gets stuck" for some background. It's about OCD but you can use it for sensory and rages and other things too. You're welcome to PM me with specifics and we'll see if we can brainstorm...

 

0

 

Just started Cure Unknown today so I'll start that one next. Love to brainstorm sometime!

[JuliaFaith]

You may have already seen this before, but just in case, you may find it interesting

 

http://www.lymeinducedautism.com/images/Belle_s_Palsey_of_the_Gut.pdf

Going to print this article and send it to the pediatric stomach doctor that said my ds was "perfectly fine" after an edoscopy and prescribed anti-anxiety medication. Thank you.

[ShaesMom]

You may have already seen this before, but just in case, you may find it interesting

 

http://www.lymeinducedautism.com/images/Belle_s_Palsey_of_the_Gut.pdf

Going to print this article and send it to the pediatric stomach doctor that said my ds was "perfectly fine" after an edoscopy and prescribed anti-anxiety medication. Thank you.

 

Did you get a copy of the path report??

[JuliaFaith]

http://www.lymeinducedautism.com/images/Belle_s_Palsey_of_the_Gut.pdf

Going to print this article and send it to the pediatric stomach doctor that said my ds was "perfectly fine" after an edoscopy and prescribed anti-anxiety medication. Thank you.

 

Did you get a copy of the path report??

No...still can I suppose. Why do you ask?