Anaplasma Infection

[lmi1973]

Hi, ds Kyle (10), was diagnosed by Dr. K this past January (2011) with pandas. Kyle had hd ivig on 2/24 & 2/25 with Dr. K. Since then, we have worked with Dr. Trifiletti as Kyle hadn't made much progress post IVIG and wanted to rule out other infections.

 

Dr. T found that Kyle had a mycoplasma infection and has been treating him with clymdamycin for past couple of weeks. The last bloodwork came back this week and it showed that Kyle also tested positive for anaplasma?! Dr. T said that this is not a common infection for pandas kids, so I'm guessing I might not get many responses here, but thought I would give it a shot. He also said that we should see a lyme doctor as anaplasma is another tick-borne illnes.

 

Has anyone had this type of infection? I think I'll post to lyme forum also since Dr. T said this wasn't something he commonly saw in pandas. Dr. T still feels Kyle has pandas (actually PITAND) and is treating as such, but wants us to see LLMD since he is unfamiliar with protocol on anaplasma treatment.

 

This was my third consult with Dr. T and he is SO amazingly knowledgeable and has such a huge knowledge base for this disorder. I highly recommend him to anyone!!!

 

Thanks,

Laura

[LNN]

Anaplasma is also known as ehrlichia. There's a recent thread on the lyme forum about it. I'm glad to hear Dr T has referred you to an LLMD, as it does need to be treated before you can tell if there's still Pitands left and before any Pandas treatment will "stick" and not be undone by an active, chronic infection. Hats off to him for testing for it and for referring to another physician for treatment.

I'd suggest going to ilads.org under the "contact us" tab and emailing them for a referral.

[lmi1973]

Been a rough day, thanks for the information!!! I will check out previous thread