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lmi1973

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  1. Dr. Beals in Stevensville, MD is awesome:) We see him primarily for Lyme treatment (drive all the way from Michigan once year to see him and do phone consults every couple of months for refills), but, he is very knowledgeable/open to pandas and very reasonably priced. Although, I wouldn't call him an expert (he is a lyme expert vs. pandas/pans), he is open to it and is very open to Rx'ing antibiotics/running bloodwork.
  2. Thanks for the response, I think I will try it and see! I'm nervous for the herx, but, if it will help him, I know I should do it. I was nervous to give him the 1,000mg of the XR twice/day, but that has done wonders for him. My son has had tick-borne too - postiive anaplasma, suspected lyme and bartonella + myco-p.
  3. Does anyone's child(ren) take Augmentin XR combined with Zithromax? My 12 yo son (approx 115 lbs) takes Aug XR 100mg BID, doctor wants to add in 250mg zithromax. Has anyone had success with or tried this combination before? My son does ok on the Aug XR so far, but, seems like a pretty hefty dose of antibiotics to be taking in/day. Thanks, Laura
  4. So glad I saw this, this topic is really relevant to what I'm going through right now. I had contacted you, bigmighty, recently because my son had started a steroid taper like the one your son had, and his symptoms went way up (ocd ramped up, anxiety/insomnia). But, I realized mid last week that I had started slacking on giving the augmentin xr twice a day. when he is in school, I ended up giving him only one dose vs. two a day bc I wanted him to have probiotics in between. Once I made the correlation with the decrease in dosage and the deterioration in his behavior/ramp in ocd and anxiety
  5. "In the hour long interview, the Dent docs claimed they tested these girls for Lyme, how could they miss that 2 were positive?" ----------- The Dent docs probably ran the standard western blot, which is notorious for false negatives. Dr. T was probably smart enough to have Igenex testing done. Also, many people sick with lyme disease do not meet the strict CDC guidelines. So, maybe the other girls also truly have lyme but don't meet the ridiculous CDC guidelines? Who knows... Thank God these girls are finally getting some basic medical treatment from Dr. T though.
  6. Thank you so much! So grateful for this forum - it must be that my pharmacy didn't look into it enough, which doesn't surprise me.
  7. My son is being treated for anaplasma, bartonella, lyme, and mycoplasma infections. For the past 5 months or so, he has been taking 250mg zithro once/day, 300mg rifampin once/day, 100mg minocycline twice/day, nizorol (prevent yeast infection). In addition, he takes lots of probiotics, various supplements, and pectasol to help chelate heavy metals. LLMD recently Rx'd bactrim as well (can't remember dose but 1/2 pill/day w/meals) which we just picked up from pharmacy and haven't started. Anyway, thought I remember reading that Dr. J preferred 150mg of Rifampin twice/day vs. 300mg once/day
  8. tpotter (or anyone), how do you go about getting the iv antibiotics? My son is being treated for anaplasma, bartonella, lyme, mycoplasma w/: zithro, minocycline, rifampin, bactrim just added. Of course supplement with lots of probiotics, etc. and he is also on nizorol to prevent yeast infection. But, I worry about his stomach being permanently torn up with all of this. We see an LLMD locally in Michigan and also consult with one in Maryland. Neither have suggested iv antibiotics. The one in Maryland mentioned bicillin shots, but the other doctor said it would be way too painful for my so
  9. This happens with my son too. He has two loose teeth right now, argh... One is like a molar that is taking forever to come out:(
  10. I work with someone who found out she has severe food intolerances (not allergies) who had similar symptoms. She saw an ND (I think just means naturopath) who ran a blood test to see what foods weren't being digested properly. She found out she had an intolerance to soy, eggs, and something else - something to do with limiting fruits and processed sugar. Once she modified her diet she said her debilitating symptoms went away (she had the choking thing/unable to keep stuff down). What's weird is all of this suddenly came on after giving birth and I know I've read somewhere that sometimes wo
  11. So sorry to hear what a rough time your daughter is going through right now. My son has lyme, bartonella, anaplasma, mycoplasma and OCD. We don't see Dr. J - I've called a couple times and are still on a wait list to get an appt. scheduled. But, am I reading this right in that we are to add pscyh meds for OCD? I was always under the impression that the OCD would go away once the infections clear up? My son's OCD has gone down a LOT since being on antibiotics, but he still has enough that it interferes with his life on a daily basis. He was on prozac for a couple of months prior
  12. My ds11 tried BEG spray also. It burned him so badly that I had to stop giving it to him. I did some more research on what could help with marcons (he tested positive for this last March & THREE ents said it was not an issue, grrrr...) Anyway, I read that Nasal Wash or Nasal Spray from supergoodstuff.com can help with clearing marcons so he's been on that for about 6 weeks now. It burns a little but nowhere near what the BEG spray did. BetterHealthGuy.com has some more information on this as well. He feels that clearing out marcons is an ongoing issue (see below) Did your son
  13. Thanks for the responses. I really needed those. Sometimes I can't think rationally in the middle of things. I definitely think he needs more detoxing. That was my other concern, like if (big if) they actually decided to help and treat him and not haul us both off to the looney bin, that they wouldn't know the right doses of antibiotics (or even the right antibiotics) and if he had a big herx that they would think it was an allergic reaction and try something else, etc. I will try getting ahold of his pediatrician and his specialist in MD. His pediatrician is new and overwhelmed, I
  14. I really need help right now. My son’s ocd is so bad that he’s been crying/hitting himself and whimpering over and over “please help me mama“. I thought he was possibly herxing again, but this is going on two weeks now and I don‘t know how much longer I can take helplessly watching him suffer. Some background - he is 10, going to be 11 in three weeks. He had sudden onset of ocd in the fall of 2010, was clinically diagnosed with pandas by dr. K in January, 2011, received ivig at the end of February, 2011. More bloodwork done in April showed mycoplasma (positive IgG and IgM) and anaplasm
  15. What dose of inositol do you give? I've been giving my son about 5,000 mg for the past three weeks and haven't seen any improvement. We are at a real low with his ocd. He is pretty much unable to do anything without it bothering him right now. We too are on the brink of begging for any med, including psych, that might offer him some relief from this. They say to heal you need rest and low stress levels, which seems impossible for someone who suffers from severe ocd like this. He is much better in many areas and I'm praying this is a short bump in the road, although it's going o
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