ShaesMom Posted April 20, 2011 Report Posted April 20, 2011 (edited) I'm having IgeneX do the WB IgM & IgG. My GP ordered some of the co-infections and CD57. I had those drawn at LabCorp so my insurance can pay for them. I spoke to the Dr at IgeneX yesterday and he told me to wait on Shae's labs until a couple of days before her next IVIg so that will be in about three weeks. So now I wait.....impatiently...... Edited April 20, 2011 by ShaesMom
pixiesmommy Posted April 20, 2011 Report Posted April 20, 2011 Thinking of you. It's a roller-coaster ride.
Suzan Posted April 20, 2011 Report Posted April 20, 2011 GOOD LUCK with the wait! It seems like forever but it will be here before you know it (easy for me to say after the fact right?). Susan
FallingApart Posted April 21, 2011 Report Posted April 21, 2011 Wait! I've thought of you so much over the last 2 years! I thought she was better! This is disheartening to see your post here. I'm so sorry for you and your family! Have you been posting all along? Can you update us on your story?
ShaesMom Posted April 21, 2011 Author Report Posted April 21, 2011 Hi Fallingapart! It sounds like you have finally found some answers for your dd-what a blessing! I'm so glad to hear that you have her on the path to healing. You are another one of those Mom's that I have thought of often as well. I don't know if we are officially on this Lyme boat just yet but I am looking into it. She was doing amazingly well and I really thought her PANDAS was in "remission" but things changed last Novemeber and have continued to get worse. She hasn't had any known exposure to strep this year that we know of and has been out of school since January so I strongly feel something else is going on. Here is the post where I try to get everyone up to speed with what's been going on... http://www.latitudes.org/forums/index.php?showtopic=13228
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