Joys and Concerns.....

[Dedee]

It is so true that God will provide our every need. As you all know I have been struggling with my daughter for so long because she absolutely will not take any medication by mouth (it's an OCD thing). We had gotten her Mycoplasma p results back showing she was positive IgG and IgM but still unable to find a way to get any antibiotics in. We had started considering putting in an IV (PICC) line & do antibiotics that way (extrememe but necessary). Then out of the blue our neurologist called and said he found a pharmacy that specializes in just this sort of issues and he was working with them to find a solution. They do strictly compounding and work with a lot of Autism and that sort of thing. So, they got me set up with Azith cream!! Can you believe that? An absolute answer to our prayers. One of the pharmacist has a son with Autism and she has been wonderful. She didn't treat me like I was crazy when I had to call back and ask questions about putting it in different places becauses my daughter was so sensitive to the smell(It smells a bit like dirty socks). We have used it five days now and can tell a difference in my daughters behavior already. She hasn't had any rages in three days. She still has all the physical symptoms and major separation anxiety but the defiance and rages are decreasing daily. We are holding our breath every day praying this might be our answer. We go back to see Dr. Murphy in two weeks for follow up. We hope to get more direction at that time.

 

In the mean time, we had the rest of the family tested for myco p. Of course, my oldest son has had PANDAS for nine years. He is doing well now but still has some residual issues. My middle son has some issues with anxiety, and OCD but hasn't been treated because he has never been severe. He is in a flare now, but still functional. Mostly has issues at night. Anyway, we found out yesterday that he is also positive IgG & IgM Myco p. His pediatrician would only give us Zith for one week. He doesn't have a PANDAS doctor. I guess I will wait to see who else in the family comes up positive and talk with Dr. Murphy when we go down in two weeks. I'm not sure what they do when multible people in the family are positive. We have all been tested but waiting on the rest of the tests to come in. Anyone else have this sort of experience?

Edited April 12, 2011 by Dedee

[Tamistwins]

Hi Dedee,

That is wonderful news that you found azithromycin in a cream form. How and where do you administer? I pray for continued healing for your family!

 

Tami

[Dedee]

You just rub it on once daily on the inside area of the wrist and arms. So far it is working well. We are seeing a difference. The rages and defiance has decreased. She still has huge seperation anxiety though.