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Posted

I wonder how many "vaccine damaged children" are actually smoldering PANDAS that finally becomes full-blown with vaccines?

 

http://vactruth.com/2011/04/01/mother-jailed-for-taking-vaccine-damaged-daughter-off-the-drug-risperdal/#

I wonder if a diagnosis of PANDAS for this girl would give the defense a medical reason to say weaning her off the meds was the right thing to do as per Murphy's finding?

 

It is a sad, sad day when a parent cannot push to get their child well, and must follow the "established" treatment protocols.

Posted

Given that my son's intial PANDAS episode came after the FluMIst, I'd say there are lots more.

 

I wish this mother had used other means of protecting her daughter. It doesn't help her case having barricaded herself and allegedly shot off a gun. However, I can understand the helplessness she must have been feeling to go to such lengths.

Posted

my heart just breaks over this whole situation - the mandatory onslaught of shots with no respect of what that means to any child's immune system let alone the total disregard of even the possibility of a vaccine reaction; the willingness to shove this girl on an anti-psychotic and who the heck involved cps in the first place??? Do we not have any choice or say in how our children get treated at this point?? i had hoped that somewhere we had made more progress as a species. How many parents withhold standard care from their children for a bazillion reasons, and why should this parent and this child be targeted? It makes me feel sick.

Posted (edited)

This does send up a red flag. However, the mother picking up a gun and shooting into the air wasn't the best thing either. Why was CPS involved in the first place...was it just because she refused to give the daughter the meds?

Edited by Vickie
Posted (edited)

This does send up a red flag. However, the mother picking up a gun and shooting into the air wasn't the best thing either. Why was CPS involved in the first place...was it just because she refused to give the daughter the meds?

 

Hi Vickie,

 

here's another article (more recent): http://www.detnews.com/article/20110331/METRO01/103310392/1409/Detroit-mom-released-from-jail-in-standoff-over-daughter%E2%80%99s-meds

 

I couldn't really figure out why CPS was involved either. Yes, clearly the mother acted inappropriately (brandishing the gun). I think that is just what some people do when it is the only way they know how to fight back. Maybe this Children's Center is some kind of a free clinic where you get a social worker attached and that is how CPS got involved?

 

Here is a website:

http://justice4maryanne.com/

 

there is also a fb and twitter page for her.

Edited by EAMom
Posted

I think there's more to this story than what the news is reporting, probably because of confidentiality laws. When the mom says she doesn't understand why they say her daughter is psychotic because she can read and write....makes me wonder if CPS was involved in the decision to send her to public school, instead of homeschooling. Because it sounds like the mom is defending her homeschooling there and not the question of whether to medicate or not.

Posted

I'm still a little confused. Actually, if the daughter was dx with Encephalitis and possibly in correlation with vaccinations, that reinforces the red flag of a possible autoimmune reaction. However, I actually understand the mom not being able to see her daughter unless supervised...again, she had a standoff with police and fired a gun! Yes, Peg, I agree that her statement about not being psychotic cause she can read, write, spell is her defending her daughter's intelligence and the mom's homeschooling, not her mental state. I feel bad for the daughter. It looks like a story that really needs guidance, but I think the mom's view is blurred and with the info I see, I don't think the root cause of all of this, the daughter's change in mental state, will be addressed.

Posted

I read that the daughter wanted to go to middle school, & the vaccine injury happened when they were catching up on her shots (multiples given in one day). The mom sought help afterwards & ended up with the Risperdal rx. It caused violence, so she was going the holistic route to heal her daughter instead. CPS showed up with the police because she wasn't giving the meds...that's when the stuff went down. I've been following it via Age of Autism. It's a terrible situation all around. Can't condone the gun, of courseb but also my heart goes out to the family. They were supposed to give the girl to family as part of her surrender, but they didn't & nobody has seen her yet...last I'd read anyway. Need to catch up on Sat's rally and such.

Posted

According to the news video, the girl was fine, then diagnosed with encephalitis ("swelling of the brain") at age 11, then received vaccines at age 13, and that is when major behavior changes started.

 

I wonder if the "encephalitis" at age 11 was actually milder undiagnosed PANDAS and the vaccines triggered an even more severe exacerbation.

Posted

I agree.

 

According to the news video, the girl was fine, then diagnosed with encephalitis ("swelling of the brain") at age 11, then received vaccines at age 13, and that is when major behavior changes started.

 

I wonder if the "encephalitis" at age 11 was actually milder undiagnosed PANDAS and the vaccines triggered an even more severe exacerbation.

Posted

Yes i also agree.

 

HOWEVER isn't prior history of encephalitis one of the things that gets screened out for immunizing with specific shots - esp MMR and pertussis? That sounds like something that was missed by her MD and i don't seem to hear that in the news. In my opinion that would have been enough for her to have a medical waver. So this is scary as well.

Posted

HOWEVER isn't prior history of encephalitis one of the things that gets screened out for immunizing with specific shots - esp MMR and pertussis? That sounds like something that was missed by her MD and i don't seem to hear that in the news. In my opinion that would have been enough for her to have a medical waver. So this is scary as well.

 

I don't know. I tried to look it up and couldn't find that on the CDC website. When I tried to google, I got a lot on "japanese encephalitis".

 

I do think this says something PANDAS in less-privilaged groups...their kids are more likely to end up with CPS in a mental institution than at Dr. K's, Dr. B's, Dr. L's correctly diagnosed and treated. :(

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