Tenex and Topamax

[mdfinx]

We went and saw a tic specialist in the neurology dept of our local children's hospital. My 8 year old son recently developed leg stretching, then proceeded to arm stretching, then to arm convulsions, and now to head jerking. I had never heard of Pandas before this site but he did have two cases of strep throat in the last 4 months, which coincided with the onset of these tics.

 

My son is really bothered by this and is asking for help. The neurologist has recommended Tenex and Topamax. Please can anyone tell me about your experience with these medicines??

[Cj60]

Hi,

 

Guy123 just posted what seems to be some useful information reagrding commonly prescribed tic medications, including some of their side effects. You might want to give that a a read.

 

But if you suspect PANDAS, I would read and chat over on the PANDAS / PITANDS forum before opting for the meds you mention, since it seems other treatments might be more appropriate.

 

Good luck with your research,

 

Chris

[guy123]

Hi,

 

Guy123 just posted what seems to be some useful information reagrding commonly prescribed tic medications, including some of their side effects. You might want to give that a a read.

 

Here's the link:

 

Tourettes Treatment

 

Tenex and Topamax are two of the drugs with the least offensive side effect profiles. The other two are Clonidine and Marinol.

 

Pretty much everything other than those 4 has side effects ranging from Tardive Dyskinesia to instant death. And many of the medications had no effect, which I tried to include as well for the sake of completeness.

 

But if you suspect PANDAS then I'd look into that first.

Edited March 31, 2011 by guy123

[idamom]

Hi,

 

Guy123 just posted what seems to be some useful information reagrding commonly prescribed tic medications, including some of their side effects. You might want to give that a a read.

 

Here's the link:

 

http://www.tourettestreatment.com/list-of-treatments.php

 

Tenex and Topamax are two of the drugs with the least offensive side effect profiles. The other two are Clonidine and Marinol.

 

Pretty much everything other than those 4 has side effects ranging from Tardive Dyskinesia to instant death. And many of the medications had no effect, which I tried to include as well for the sake of completeness.

 

But if you suspect PANDAS then I'd look into that first.

[idamom]

Hi there,

I have had Tourette's since i was 7 years old, now I a 34. Topamax is the first medication that has given me any real relief without any terrible side effects. I still do whatever I can with food, herbs, etc. to lessen the battle but am grateful for the respite. I was very slow to get on the medicine to make sure that any side effects,mostly digestive, were under control but it has by far been the best coverage with the least amount of side effects. Good luck and feel free to respond with any questions.........Bree