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Cj60

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Everything posted by Cj60

  1. Hi, When my son's tics were at their peak (multiple tics, both simple and complex), the breathing tic (slow deep breaths kind of through his nose and mouth simultaneously) appeared. Breathing tics are classified as a vocal tic, so a pediatric neurologist diagnosed TS, with the caveat that the tics had not been present for a full year. (Even so, she prescribed some toxic meds we opted out of, so be wary of pediatric neurologists.) Ultimately we found an environmental practice and ended up eliminating lots of foods and rotating lots of others in his diet. A long term consistently healthy
  2. Ahh. Sorry to be misleading. No, we didn't do a candida or paleo diet. Going without grains would have definitely made things more difficult. Nonetheless, we did make significant changes regarding what gets eaten. I've known others whose children would have benefitted from a diet change but never considered doing it because, basically, it's too tough to do. "What?? No froot loops??" I guess, recognizing that the dietary changes you're facing are so tough to do, I'd want to have some good sound reasons behind my decision to do it. Other professional opinions? - Chris
  3. This would make me a little uneasy. I'd think a dr. should be able to be somewhat specific if s/he is prescribing supplementation. It was worth it for us! A real drag at first! New diet, new shopping practices, more money (for healthy food), challenges helping a child manage a new diet while his friends are not having to deal with the restrictions s/he is dealing with. All in all, a significant life style change that takes lots of work. But it helped us. So for us it was (is) worth it. I'd just make sure you have a dr., environmental or other, that you are comfortable with a
  4. Hi Tiger, I strongly suspect that my son's tics were caused by sulfation issues, which can be closely related to phenol and salicylate issues. Here's a link with some basics: http://www.livingnetwork.co.za/chelationnetwork/food/sulfates_sulfation_feingold/ If you google you'll find loads of good reading on the topics. After a period of worrying and watching and reading and getting invaluable help from this forum, it turned out that diet and a couple of supplements were our most effective way of helping him with his sulfation issues. The process of watching everything he ate was cr
  5. Hi, Perhaps your son's throat clearing has an ocd-ish element that your other children didn't exhibit, so it's partly a compulsion? When we were suspecting ocd behaviors with our son, we would prepare teas with licorice root and/or lemon balm as ingredients, and we would stir in some inositol and honey. This would help the minor symptoms we observed. I just looked through my cabinets and didn't see any still sitting around back there with licorice root, but we always have Tummy Comfort (with lemon balm) on hand. You might want to check Chemar's signature link for some recommendable tea
  6. Did a quick forums search. Found: http://latitudes.org/forums/index.php?showtopic=23191&hl=tumeric#entry177254 That topic has a post from a llm: Posted 28 September 2014 - 02:14 PM This Time Magazine article on Tumeric's neuro-regenerative properties might be of interest http://time.com/3442...E: Top Stories) Many on the forum use tumeric in the form of Enhansa by Lee Silsby http://leesilsby.com/enhansa-homepage but you can also get forms of tumeric OTC. High doses of Omega 3s can also help with excessive brain inflammation and CoQ10 is known to help restire the myel
  7. Hi, Natural Calm was our go to supplement when we first started addressing tic issues. We also built up to 1 tsp in the am and antoher in the pm. We found that any more than that resulted in loose stools, which is usually the factor that tells you your child has hit her/his limit. Eventually we added on a powerful, comprehensive multi vitamin, which contained a significant amount of mg, so at that time we tapered off of the Natural Calm. Good luck! Chris
  8. I think being up front with your kids (to the extent that they get what you're telling them) is the best thing. My son knew he had to deal with restrictions that other kids didn't have to deal with, but we always let him know that the changes were in his best interest. We also tried to compensate with other kinds of rewards when it was possible and appropriate to do so. Halloween was hard. But more for us than him, because we thought he would feel different. But he didn't. He still trick or treated with his friends, brought the crap home, and we subsituted it for other things that made him jus
  9. Hi, Once we had run the gamut of tradtional drs. (Pediatrician, Ped. Neruologist, Ped. Psychologist), we sought out an environmental practice. A big part of the practice (but not the only part) was the allergist. His method was the pin prick method. He asked for details about our son's diet, then based on that information targeted a whole bunch of food items to test for by pricking my son's upper arms with the potentially offending agents. According to the reaction, he determined the level of harm the item was causing. My son was young at the time, and his upper arms weren't big enough
  10. Hi Barb, Sorry, I can't recommend anyone from that area. Did you do a search at the American Academy of Environmental Medecine website (http://www.aaemonline.org)? You can search practices by state. When I searched I got a list, like you said, but decided just to contact the closest ones. From there we went with the one that could give us the quickest appointment. Chris
  11. Hello Barbara, There definitely can be a link between gastrointestinal problems and tics. While you're waiting for your dr. visit, you can try to keep your son's diet as healthy as possible: no artificials, preservatives or other chemical additives; eat organic and avoid GMO foods to the greatest extent possible. Removing dairy, which is a common food problem for children with sensitive digestive tracks, is probably a good idea. Also, is there a food that he eats far more commonly than other foods? If so, his body may have developed an intolerance to it, so curbing his intake or removing t
  12. Hello, I can fully relate to the worry and sleeplessness. Neither help anything, however, so breath deep, and have confidence that now that you are at work on figuring things out, you're moving in the right direction. Doing something (like gathering information here and elsewhere) is helpful, for both your child and yourself, so give yourself a pat on the back for being proactive. My time on this forum has led me to recognize that there are different physiological / neurological issues that result in ticcing. In my case, our children's tic issues, which have ranged from a little fright
  13. I've seen manganese mentioned here. Might be worth searching. Manganese does have noted health benefits. But it is also easy enough to get through common food sources (oats, brown rice, chick peas, … ). It's in the multi I give my kids (2mg / 100%) and has had no perceived adverse affects. Even when they probably get plenty of it through their diet. I see stuff in the label posted above that I wouldn't put in my kids' bodies, let alone the manganese. And wonder bread is simply unhealthy food. Shouldn't be in anyone's diet, in my opinion. - Chris
  14. Hi, I've not dealt directly with sensitivities like the ones you're describing, but over the years I have seen many such tics described and discussed on this forum. Hopefuly you'll be receiving good feedback soon. One thing I might observe from what you write is that while I can certainly understand a child's frustration with someone adjusting his clothes in a way that makes him uncomfortable, it seems like the reaction you describe is worth paying attention to, especially considering that an infection might be related to the onset of the sniffing tic. You'll get very helpful infor
  15. Like your son, my son's tics started and stopped over a period of several years, then seemed to multiply over a period of a few months to the point of becoming a real concern to us. But dietary changes did end up (eventually) making a noticeable difference with him. My suggestions would be: 1) be very cautious with regard to the feedback you get from the ped. neur. My experience with the two I saw was that they are way behind the curve with uncovering root causes to tics. In our case, they were useless (even harmful considering the stress and concern that they provoked). 2) identif
  16. Thanks for the post!! My children have stopped the prescribed vaccination schedule since we started dealing with tic issues. I'm considering getting them back on a very slow, one at a time schedule. But this makes me very nervous: In another forum a parent posted research about immunizations and CDC statistics. In the article there was mentioned that immunizations and vacinations are contaminated with mycoplasma bacteria, approximately 55%+.Can you provide the citation? Thanks, Chris
  17. My son had a breathing tic when his tics were at their highest point, just as we started getting help from an environmental practice that helped us with some food eliminations and a rotation diet, along with a couple of other things. And on other ocassions, even when the tic wasn't noticeable to me, he mentioned having the feeling of not getting enough air, which I considered to be the same issue as the noticeable tic. It was probably the first tic to go away once we adjusted his diet. Perhaps the regular supplement of magnesium (Natural Calm and epsom salt baths) helped, too. Chris
  18. Hello Genevieve, I understand your concerns. The few years I've been on this forum have taught me that every child's situation is unique, that there is what seems at times to be an endless process of trial and error. But I believe that the most important thing a parent can do is to take steps. You are taking steps and I believe they will ultimately have positive results. Some of what you say reminds me of what we went through. Initial onset of tics (eyelash pulling, stopping while walking and squatting to pull up socks, and probably others we didn't pick up on) started around age 4. I
  19. You might give this link a try: http://www.aaemonline.org - Chris
  20. Hi, I think I recall (it's been a while) using around a heaping teaspoon of natural calm in hot water with honey when we were using it. Like you say, the real indicator will be the loose stools. I don't think we could go above that dosage in one day. On some days, we would do epsom salt baths in addition to the NC, (NC in the morning, epsom salt in the evening) which didn't adversely affect bowel movements. We stopped the natural calm when we started using the spectrum complete multivitamin, which has 200 mg. of magnesium per serving. I think we tried taurine a couple of times
  21. Our environmental dr. was a little different. He took things one step at a time. That is, one supplement at a time in order to be able to accurately monitor reactions. Your son has been given a barrage of simultaneous treatments which might make it difficult to see what's effective and what's not, or even what specifically might be making things worse so you can determine whehter there's herxing or just a negative reaction.
  22. We started off with what we thought were decent multis from our local health food store. But as we got more and more informed about what we were putting into our child's body, we found that they were not up to snuff. We then began to order our supplements from Kirkman Labs (http://www.kirkmanlabs.com). They have a children's multi (Spectrum Complette II) that has had positive results (in conjunction with other significant dietary modifications) with our son. If you get the chance, read Safeplate's post on GMO ingredients. While that post focuses on identifying GMO ingredients, the kind of
  23. Thanks for posting the link to these very useful lists, Safeplate!! - Chris
  24. We also experienced a gradual decrease in tics after establishing dietary changes. Part of that process were occasional rises in tic activity. But we never observed a sustained increase of new tics. Are your children taking good multivitamins? That was something that brought about a noticeable improvement in our son well after we had initiated the new diet. He had been taking a fairly generic multi as part of the modifications to his diet, but when we switched to a fairly potent one, the improvement was almost immediate. There are threads on this forum that mention different brands of good
  25. Here's the link to the American Academy of Environmental Medicine. You should be able to turn up some environmental practices by doing a search there. http://www.aaemonline.org Good luck, Chris
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