norcalmom Posted March 6, 2011 Report Posted March 6, 2011 I'm doing the antibiotic challenge for the Dot blot / PCR test. Frankly if it weren't for DS we would never do this (even llmd said this). I don't have any lyme symptoms. I am positive Igenex, just barely, and negative CDC. What is looks like is I had exposure and either my very strong immune system took care of it appropriately, or the disease in in area it presents no symtoms (and or cystic)...and its been that way for 30 year. LLME did say that doing this could bring out the disease and make it active. (if it is still there). The ONLY thing (besides metalitc taste in mouth and diarhea from anitbiotics) that I feel is a very, very minor "vibration" that is pulsing on and off. I can 't even call it a tremor - it is that small. Its deep in muscle tissue, and is about the area of a square inch. ITs always int he same spot. (near buttocks, upper inner thigh) Its just weird. I did see someone post about virbrations/buzzing. Who else get this? I'm on enough antibiotics to choke a horse. - doxy, tindamas, and azith - all high,high, dose. But only for 5 days. What's the theory behind this vibration thing? Is this common, has anyone seen this come up on other Lyme boards? I really don't think I have it at this point - this test would have to light up like a Xmas tree to convince me - but the "vibration" thing is odd. cold be antibiotic side effect? I have NOTHING else that is symptomatic.
MichaelTampa Posted March 6, 2011 Report Posted March 6, 2011 Can't say that I've ever even heard of the vibration thing. Is it possible that on some level it is like a muscle spasm?
Suzan Posted March 6, 2011 Report Posted March 6, 2011 I have the vibration thing.... It started maybe last year on my scalp. It's always in the same place. I didn't know anything about lyme at the time and I had no idea what it was. I thought maybe I had some scalp problem and started using dandruf shampoo. It would come and go but at the time, I never would have described it as a vibration. Fast forward to my lyme diagnosis and about 1 month after being on meds, my shoulder blade started vibrating. It felt exactly like a cell phone vibrating under my skin. I realized it was the same feeling in my head but since there was no fat there, it felt different. When I told my LLMD about my shoulder, she said the same thing happened to her. I've felt it on both sides of my scalp and shoulders but it's mostly on the left side and always in the same spot. I've posted this question about the vibrating on another lyme board and there were several people there who all had it and all described it like a cell phone vibrating under the skin. My LLMD said it took about a year on lyme meds for hers to completely go away. Susan
norcalmom Posted March 6, 2011 Author Report Posted March 6, 2011 A cell phone on vibrate would be accurate description of mine as well- because it "pulses" riiiiiiing. pause. riiiiiiing. pause. Its very subtle - but can't deny it is there. Doesn't matter if I change positions, or rub it, or tense my muscles, it continues in this vibrating/pulsing pattern.
kmom Posted March 7, 2011 Report Posted March 7, 2011 Wow! I have this same vibration deep in my left thigh sometimes. It started over a month ago after introducing Ceftin to the Doxy I had been on. I 1st felt it while I had my coat on and the 1st thing I did was check if my cell ph was in my left coat pocket on vibrate. That's the best description...a vibrating cell ph sensation against my skin. I hardly ever have my ph on vibrate though. I usually have it either on ring or off but my inital reaction was to check if it was on vibrate. Turned out my cell phone wasn't on vibrate or even in my pocket! It was in my purse. I haven't felt it in the past week or two. I seem to feel it when an additional abx is added or an abx change happens so I assumed it was a herx reaction.
Vreni Posted March 9, 2011 Report Posted March 9, 2011 Came across this forum when I was looking up new Lyme information. I have late Lyme so I am not new to strange symptoms. A couple of months ago I had a sensation that the floor was moving slightly. It didn't matter if I was sitting or standing. I would ask friends and family "do you feel the floor moving or vibrating?" Nobody could feel the same sensation that I seemed to so I quit asking others about it. Then I laughed out loud when I realized that the vibration was within my own body, I mean, I laughed because I finally realized that the sensations I am experiencing are real. Nothing like another Lyme symptom to confirm I'm not losing my mind, right? ;-o That being said, some of us have lots of neurological problems. These symptoms are really difficult because there is not much that can be done about them. Hopefully you will have decreased Neurological symptoms or none at all soon. Best of luck to you.
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now